A Collaborative Book On Polypathology by the OPIMEC

VIBiotechnology

Sep 30, 2011 (5 years and 8 months ago)

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A Collaborative Book On Polypathology by the OPIMEC Community: the editing experience Isac B1, Gosálvez D1, López A1, Contreras AJ1, Cabrera A1, Jadad AR 2 1Andalusian School of Public Health, 2 University Health Network, Toronto University 1Granada, Spain, 2Toronto, Canada

Isac B
1
, Gosálvez D
1
, López A
1
, Contreras
AJ
1
, Cabrera A
1
, Jadad AR
2


1
Andalusian School of Public Health,

2

University
Health Network, Toronto University


1
Granada, Spain,
2
Toronto, Canada

A Collaborative Book
On Polypathology by
the OPIMEC
Community: the editing
experience



New phenomenon



polipathology



A collaborative virtual environment


www.opimec.org



A
key meeting


Seville,
March 2009


Ten topic areas


The
challenge



Would it be possible to co
-
create a book
on polypathology, from scratch, within a year, with volunteer
contributors from all over the world, using online social
media and with no financial incentives
?

Introduction


1. Why Multiple Chronic Diseases? Why now? What is going on around the
world?
AR. Jadad

2. The language of polypathology.
M. Ollero, M. Bernabéu and M. Rincón

3. Prevention and health promotion.
R. Smith, C. Rabadán
-
Diehl, A.
Cravioto and A. Wall
-
Medrano

4. Management models.
R. Bengoa, F. Martos and R. Nuño

5. Patient education and self
-
management support.
P. McGowan P, K. Lorig,
AR. Jadad

6. Primary care.
M. Ollero, JM

de la Higuera, M. Bernabeu and MA Ortiz

7. Supportive care and palliative care.
A. Lee and O. Yew Jin

8. Integrative medicine.
C Tamayo, A Arreaza and C Almonte

9. Socioeconomic implications.
F. Martos and E. Herrera

10.Genomics, Robotics, Informatics/eHealth and Nanotechnologies.
J.Lorca

The approach: Areas


Use language

accessible

to different potential
audiences


Disclose affiliations


Make
explicit any personal or organizational bias


Avoid over
-
emphasizing or focusing

on issues related
to professional activities or organizational goals


Acknowledge, whenever possible, the
work of all
individuals and organizations


Contribute
without financial or political incentives


The approach: Principles


Vignette:

a vision of the future using a 20
-

to 30
-
year
horizon


Summary


Why is the topic important?


What do we know?


What do we need
to know?



What innovative strategies could fill the gap?

The approach: Chapter structure



From authorship to contributorship

to acknowledge
the work of members of collaborative groups

Smith R. Authorship is dying: long live contributorship. BMJ. 1997;
315: 696. Available at:
http://www.bmj.com/cgi/content/full/315/7110/696



From Copyright to Copyleft

to promote the exchange
of works accesible to the public without restriction



So we use
Creative Commons licenses


The approach: intellectual property

More than
13,000 visits

from people in
80
different
countries



235 comments
on the chapters from 55 people and 18
countries.

Chapters with most comments:


Health promotion and prevention


Patient education and self
-
management


The language of polypathology


Socioeconomic implications


The output: Participation


June of 2010: the
entire edited version is
available as a free
hard copy or in PDF,
for free download at
www.opimec.org
.



Chapters will also
continue to be
available at
www.opimec.org
, as a
“live” version.

The final output


It is essential to have a clear common goal, a diverse
editorial group, and institutional support


Matching versions of the same document in multiple
languages is difficult


Firm deadlines for contributions must be set and
enforced


Technological glitches are unavoidable


Copyleft and contributorship are viable options


What did we learn during the process?

What offers this book?



Easy access to the best
knowledge

available in ten
main areas related to polypathology


Questions
that could drive collaborative projects to
meet the challenges of polypathology

What does this book give us?

We have proved that we can work across traditional
boundaries, as we contribute to a common agenda

Conclusion

We must scale up the level of our commitment to create
and implement the mighty interventions that are required
to overcome the challenges we face together

and



Thank you for your attention and support


See you at:
www.opimec.org