Electronic Data Systems Workgroup

roughhewnstupidInternet and Web Development

Nov 18, 2013 (3 years and 6 months ago)

81 views

Child Developmental
Screening
Initiative

Electronic
Data Systems
Workgroup

Tasks


Investigate
how

existing and developing
information systems can be included in
comprehensive developmental screening
system


Determine
who

should have access to an
integrated screening information system


Determine
what

data should be recorded
and maintained

HOW to include existing systems


Early Learning Information System (ELIS)


Web
-
based early learning data system


Currently in development stage at OEL


Slated for roll
-
out in 2013


Will require final state funding during 2012
Legislative Session


Plans for eventual interface with other state
data systems, including Florida SHOTS

Florida SHOTS


A free, statewide, centralized, online
immunization registry that helps health care
providers and schools keep track of
immunization records


Secure and trusted web
-
based electronic system


Authorized users (health care providers can
input and access data; schools and child care
providers can view data) can access up
-
to
-
date
immunization information

Proprietary Systems


Early Steps uses the
Battelle Developmental
Inventory

data system to store and track data on
child screening (new data system anticipated
next year)


Early Learning Coalitions are beginning to use
Ages and Stages Enterprise

data system to
store and track data on child screening (ELIS will
eventually interface with this system)

Hillsborough Collaborative Screening
Initiative


Screening of 60
-
65 children once a month
in rotating community locations


35 community
-
based partners


Use of a locally developed web
-
based
referral and follow
-
up system


With parent consent, copy of screening
results sent to pediatrician (electronically &
via mail)

Hillsborough Lessons Learned


Local systems can work and can be
duplicated in other areas of the state (e.g.,
similar initiative now in Leon County)


Importance of lead agency for planning &
accountability


Recognition of parent choice and provider
issues
-

there is not always the follow
through that is recommended

CHEER


Children’s Heath Education and Economic
Resource (CHEER)


combines electronic
health and academic records for students
in Miami
-
Dade County


Stores data for 2 million children


For use by Doctors and Teachers


Partnership


The Children’s Trust, Health
Choice Network, Miami
-
Dade County
Public Schools, Ready Schools Miami and
Microsoft

Other Data Systems


Healthy Start has its own data system for
collecting and housing maternal and child
screening information


Infant Metabolic Screening Data (collected at
birth) is housed in a separate data system


Florida Children and Youth Cabinet Information
Sharing System Sub
-
committee is continuing to
investigate the data
-
sharing system developed
by the court system

WHO needs access to screening
data?


Health Care Professionals


Schools and early learning providers


Families


There can and should be differentiation
between those that can
input

data and
those that can
view

data

WHAT data should be recorded
and maintained?


Individual child data to ensure


Children are screened


Children receive follow
-
up assessment and
services


There is an assessment of the impact of
intervention


Aggregate data for planning and
evaluation purposes

Challenges


Ensuring compliance with HIPAA and
FERPA requirements


Data
-
sharing barriers between health care
professionals and other community
partners, including child care providers,
relative to perceived credibility and
expertise


Importance of linking to the K
-
12 student
identifier

Child Developmental
Screening
Initiative

Follow
-
Up
Services
Workgroup

About

This

workgroup

focuses

on

strategies

for

the

large

number

of

children

screened

who

could

benefit

from

early

intervention

but

who

do

not

yet

qualify

for

Early

Steps

or

school

system

services
.

Strategies

such

as

anticipatory

guidance,

developmental

activities,

referrals

to

high

quality

early

childhood

programs

like

Early

Head

Start,

and

ensuring

these

high

risk

children

don't

fall

through

the

cracks
.


Members


Dr. Mimi Graham


Florida State University (Group Leader)


Dr. Susan Gold


University of Miami


Amanda Moore


Office of Early Learning


Cynthia Fuller


Office of Insurance Regulation


Dr. Barbara Foster


Department of Economic Opportunity


Judy Taylor
-
Fischer


Agency for Healthcare Administration


Dr. Mercedes Rodriguez


Osceola County Health Department


Dr. Sharon Hennessy


University of Florida


Karen Wiggins


Healthy Start Coalition


Allison M. Parish
-

Healthy Families Florida


Martha Harbin


Snow Team Project Staff

Tasks


F
or those children who need follow
-
up
services and regardless of whether they
qualify for Early Steps, how could the
electronic system:


Include data
to connect those
kids and their
parents and/or caregivers
to
available
programmatic and informational sources.


Help ensure there are resources available to
enable everyone
in the child’s life
to be
included
in the process
.

Approach

1)
Compile a list of recommended tools and
activities for parents and caregivers to use with
their children.

2)
Compile of list of local organizations (including
non
-
traditional) that may provide services to
these families.

3)
Identify the professionals and/or organizations
who should receive the compiled resource
information.

4)
Determine
marketing plan elements to distribute
resources

to
parents and
others.

#1: Potential Recommended Tools

Web
-
Based Resources*

*Research conducted on English
-
based web browser. Similar research on a Spanish
-

or French
-
based search engine
may yield additional resources not listed below.

Resource

Price

Available
Languages

Florida Office of Early Learning

www.Floridaearlylearning.com/earlylearnin
g/OEL_CCRR_Networks.html

Free

English

and
Spanish
materials

The Early Learning Community

www.earlylearningcommunity.org

Free

Some downloadable materials

available
in
Spanish

Learning Games

www.learninggames
forkids.com

Free

English

only

Learn 4
Good

www.learn4good.com

Free

English

only

The Early Childhood Initiative Foundation
(Teach More/Love More
)

www.teachmorelovemore.org

Free

Site available in
English, Spanish
&
Creole

Bright Futures
(AAP)

http://brightfutures.app.org/

Limited
free
content for
parents

English

Text4baby

www.text4baby.org

Free
(No charge
for the
texts)

English & Spanish

FamilyEducation

www.familyeducation.com

Free

English

PBS

Kids Sprout for Parents

www.Sproutonline.com

Free

English

BabyZone

(Disney)

www.babyzone.com

Free

English

#1: Potential Recommended Tools (Cont.)

Proprietary Materials

Resource

Price

Available
Languages

Baby Builders

www.babybuilders.com

DVDs: $24.95

DVD:
English & Spanish

Book:
English & Spanish

Pamphlet series:
French

DVD & Book: $49.95

French Series: $24.95

Infant Evaluation Forms (25 two
-
sided
sheets): $45

Hawaii Early Learning
Profile
(Help® Birth to 3)
www.vort.com

Admin
&
Ref.

Manual
: $
59.95

English & Spanish

HELP® Strands Booklet: $3.25 each

HELP…at Home (0
-
3)

www.vort.com

2
nd

Edition
English


556 pages: $
89.95

English & Spanish

1
st

Edition Spanish


160 pages (covers
only 140 key skills of 685 HELP 0
-
3 skills:
$49.95

Understanding My Signals
(UMS)

www.vort.com

Parent booklet & User’s Guide:
$3.95/each

English & Spanish

Pkg

of 20 booklets

w/

User’s Guide:
$37.95

Best Beginnings

www.vort.com

Binder & Chart: $49.95

English

only

Best Beginnings Chart (
pkg

of 25): $24.95

Parent Questionnaires (binder of
Masters): $39.95

#2: Preliminary list of existing local
organizations that may provide services


L.L.
Schendel

Speech and Hearing Clinic at FSU
(http://commdisorders.cci.fsu.edu/speech
-
hearing
-
clinic)


PREVENT Program
(www.jud11.flcourts.org/SCSingle.aspx?pid=26)


Local Early

Learning Coalitions
(
http
://spe.schoolreadiness.org/pe
/)


Florida State University First Words Project
(http://firstwords.fsu.edu)


Mailman Center for Child Development, University of Miami
:


Building Babies’ Brains
(http://pediatrics.med.miami.edu/debbie
-
school/training/continuing
-
education/)


Debbie Institute
(http://pediatrics.med.miami.edu/debbie
-
school)


Interdisciplinary Screening Program
(
http://pediatrics.med.miami.edu/mailman
-
center/clinical
-
services/ideas
)


Early Discovery Service Project
(http://pediatrics.med.miami.edu/mailman
-
center/research/demonstration
-
projects/early
-
discovery/)


Linda Ray Intervention Center, University of Miami
(
www.lindaraycenter.miami.edu)


Dade County Public Schools Florida First Start
(http://beckham.dadeschools.net/Special%20Programs/even_start.htm)

#2: Preliminary list of
existing local
organizations that may provide
services (Cont.)


Easter Seals Florida
(http://fl.easterseals.com/site/PageServer?pagename=FLDR_early_interven
tion)


Tampa Bay Early Intervention Center


Home
-
based Early Intervention in Tampa


Igoe
-
Amar Child Development Center in West Palm Beach


Pinellas County ARC
(www.parc
-
fl.org)


Family Focus


Free Screening Services


Margaret E.
Dickins

Children’s Technology and Multi
-
Sensory Room Center


Discovery Learning Center


Florida Children’s Services Council
(www.floridacsc.org)


CSC of Broward County


Children’s Board of Hillsborough County


Jacksonville Children’s Commission


CSC of Martin County


The Children’s Trust of Miami
-
Dade


CSC of Palm Beach County


JWB


CSC of Pinellas county


CSC of St. Lucie County


Florida Outreach Project (FOP
) (www.deafblind.ufl.educ)


Space Coast Early Intervention Center (SCEIC
(www.sceic.org)

#2:
Preliminary list of existing state
organizations that may provide services (Cont.)


United Way of Florida
(
www.uwof.org
)


The Center for Autism and Related Disabilities (CARD)
(
www.centerforautism.com)


Florida’s Head Start Collaboration Office



includes Early Head
Start

(www.floridaheadstart.org)


Florida Office of Early Learning
(
www.floridaearlylearning.com
)


Private insurance
: “
H
abilitative

services” (versus rehabilitative
services), such as Speech, OT and PT will be included in the
essential services to be offered by insurance companies under
Federal Affordable Care Act.

#3:
Identify professionals and/or
organizations who should receive the
compiled resource information


Pediatricians


County Health Departments


Home visitors


Child care centers


Child protection investigators (DCF and
Sheriffs’ Offices)


Community
-
Based Care managers


Faith
-
based organizations

#4:
Marketing Plan Elements


Interface with the Electronic System that Stacy Howard’s workgroup is
developing.


Suggested organizations through which to distribute information:


Florida Chapter, American Academy of Pediatrics
(www.fcaap.org)


DOH

(http://www.doh.state.fl.us/alternatesites/cms
-
kids/families/early_steps/early_steps.html)


DCF
(www.dcf.state.fl.us/children/)


Florida Sheriffs Association
(www.flsheriffs.org)


Healthy Families Florida
(www.healthyfamiliesfla.org)


Early Head Start/Head Start
(www.floridaheadstart.org)


Whole Child Leon
(www.wholechildleon.com)


Early learning coalitions
(www.earlylearningassociation.org)


Parents as Teachers
(www.parentsasteachers.org)


Family Café
(www.familycafe.net)


Miami Safe Start Initiative
(www.miamisafestartinitiative.org/safestart/)

Sponsored by United States Department of Health and
Human Services, Administration on Developmental
Disabilities and the Florida Developmental Disabilities
Council, Inc.