Patient2PatientÒ Alzheimer's WebGuide - Changemakers

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Dec 3, 2012 (4 years and 8 months ago)

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1

Patient2Patient


Alzheimer’s WebGuide


JULY 15
, 2007

Medical Sites Reviewed by Michael Lin, M.D., Assistant Professor of Neurology and

Neuroscience, Weill Medical College of Cornell University, New York Presbyterian
Hospital, NYC

Complementary/Alternativ
e Medicine Sites Reviewed by Ira Zunin, M.D., M.P.H., M.B.A.,

President, Hawaii State Consortium for Integrative Healthcare; President, Kokua
Integrative Healthcare Solutions; Medical Director, Manakai O Malama Integrative
Healthcare Group and Rehabilitati
on Center, Honolulu, Hawaii

Patient2Patient
®

Information is Medicine


Patient2Patient, LLC | 1550 York Avenue, Suite 4H | New York City 10028

Phone: 800.395.5722 |
http://www.Patient2Patient.net



Alzheimer’s Disease


© COPYRIGHT 2003
-
2007; PATIENT2PATIEN
T LLC, ALL
RIGHTS RESERVED. THI
S WEBGUIDE IS THE PR
OPERTY OF PATIENT2PA
TIENT, LLC, AND
CONTAINS PROPRIETARY

AND COPYRIGHTEDINFOR
MATION. THE COPYRIGH
T EXTENDS TO TEXT, C
ONTENT, FORMAT DESIG
N AND STYLE.
PATIENT2PATIENT GRAN
TS THE SUBSCRIBER A
LICENSE FOR THE USE
OF THI
S WEBGUIDE FOR THEMS
ELVES AND ONE OTHER
ADDITIONAL
PERSON. ANY PERSON W
HO USES OR RECEIVES
THIS WEBGUIDE AGREES

THAT THEY THAT THEY
WILL NOT COPY, ALTER
, REPRODUCE OR
DISTRIBUTE THIS WEBG
UIDE, IN WHOLE OR IN

PART, FOR ANY PURPOS
E.


2



Table o
f Contents
(CLICK ON A TOPIC OR

PAGE NUMBER TO JUMP
TO THAT PAGE.)

About This Guide

................................
................................
................................
...........

7

How to Use This Guide

................................
................................
................................
.

9

About Privacy Policies

................................
................................
...............................

14

Diagnosis and
Treatment Decisions

................................
................................
..........

16

Disease and Condition Background

................................
................................
..........

17



Alzheimer’s Association
................................
................................
........................

19



Alzinfo.org

................................
................................
................................
.............

20



MayoClinic

................................
................................
................................
............

22



WebMD

................................
................................
................................
.................

23



MEDL
INEplus (National Library of Medicine)
................................
.......................

25

Treatment Information

................................
................................
................................

27



Alzheimer’s Association
................................
................................
........................

29



Alzinfo.org

................................
................................
................................
.............

30



WebMD

................................
................................
................................
.................

32



MEDLINEplus (National Library of Medicine)

................................
.....................

33

Specialty Doctors

................................
................................
................................
.......

35



The Alzheimer’s Disease Education and Referral Center

................................
..

36



The American

Medical Association

Doctor Finder

................................
............

37



AIM DocFinder

................................
................................
................................
......

38



Alzinfo.org

................................
................................
................................
.............

40

Alzheimer’s Disease

PATI
ENT2PATIENT ALZHEIMER’S WEBG
UIDE™


3

Specialty Hospitals

................................
................................
................................
.....

42



The Alzheimer’s Disease Education and Referral Center

................................
...

44



American Health Assistance Foundation

................................
.............................

45



DoctorDirectory.com

................................
................................
.............................

46



Alzinfo.org

................................
................................
................................
.............

48



Directory of America’s Hosp
itals

................................
................................
..........

49

Clinical Trials

................................
................................
................................
..............

51



The Alzheimer’s Disease Education and Referral Center

................................
...

53



Alzheimer Research Forum

................................
................................
..................

54



ClinicalTrials.Gov

................................
................................
................................
..

56



CenterWatch: Clinical Trial Listing Service

................................
..........................

57



Veritas Medicine

................................
................................
................................
...

58

Tools

................................
................................
................................
.............................

60

Medical Dictionaries and Encyclopedias

................................
................................
..

61



MedTerms.com

................................
................................
................................
.....

63



Merriam Webster Medical Dictionary

................................
................................
...

64



Encarta.com

................................
................................
................................
..........

66



The Adam Health Illustrated Encyclopedia (National Library of Medicine)

.........

67

Diagnostic and Lab Tests

................................
................................
..........................

69



Diagnostic Tests: The Harvard Family Health Guide

................................
...........

70



Lab Tests Online

................................
................................
................................
..

71

Medication Inf
ormation

................................
................................
..............................

73



RxList

................................
................................
................................
....................

75



DrugDigest

................................
................................
................................
............

76



InteliHealth

................................
................................
................................
............

77

Drug Interaction Databases

................................
................................
.......................

79



DrugDigest

................................
................................
................................
............

80



HealthScout

................................
................................
................................
..........

81

Support

................................
................................
................................
.........................

83

Living with Alzheimer’s

................................
................................
..............................

84



Alzheimer’s Association
................................
................................
........................

85


4



WebMD

................................
................................
................................
.................

86

Early
-
Onset Alzheimer’s Patients

................................
................................
..............

88



MayoClinic

................................
................................
................................
............

89

Caregiver Resources

................................
................................
................................
..

91



Alzheimer’s Association
................................
................................
........................

93



Alzinfo.org

................................
................................
................................
.............

95



Family Caregiver Alliance

................................
................................
.....................

96



National Family Caregivers Association

................................
...............................

98

Local and Onl
ine Support Groups

................................
................................
...........

100



Alzheimer’s Association
................................
................................
......................

102



WebMD

................................
................................
................................
...............

103



Car
egiver.com

................................
................................
................................
....

105



Healthboards.com

................................
................................
..............................

106



Empowering Caregivers

................................
................................
.....................

107

In
dividual’s Web Sites

................................
................................
..............................

109



Coping with Alzheimer’s Disease

................................
................................
.......

110



Alzheimer’s Outreach

................................
................................
.........................

111



A Year to Remember

................................
................................
..........................

112

Resources

................................
................................
................................
..................

113

National Organizations

................................
................................
.............................

114



The Alzheimer’s Disease Education and Referral Center

................................
.

116



Alzheimer’s Association
................................
................................
......................

117



American Health Assi
stance Foundation

................................
...........................

119



Alzheimer’s Research Foundation

................................
................................
.....

120



Alzinfo.org

................................
................................
................................
...........

121

Additional Resources

................................
................................
...............................

123



HealthCareCoach.com

................................
................................
.......................

125



HealthInsuranceInfo.net

................................
................................
.....................

126



NeedyMeds

................................
................................
................................
.........

127



Together
-
RX

................................
................................
................................
.......

129



BenefitsCheckUpRx

................................
................................
...........................

130



Partnership for Prescription

................................
................................
................

131



Assistance

................................
................................
................................
..........

131



The Medicine Program

................................
................................
.......................

132



BenefitsCheckUp

................................
................................
................................

134


5



Mercy Medical Airlift

................................
................................
...........................

135

Complementary and Alternative Therapies

................................
.............................

137

Complementary and Alternative Medicine

................................
..............................

138



WholeHealthMD.com

................................
................................
..........................

140



National Center f
or Complementary and Alternative Medicine (NCCAM)

.........

142

Diet and Nutrition

................................
................................
................................
......

143



WebMD

................................
................................
................................
...............

144



Nutrition.gov

................................
................................
................................
........

145

Herbal Databases

................................
................................
................................
......

147



WholeHealthMD.com

................................
................................
..........................

148



MSKCC.org

About Herbs, Botanicals and Other Products

.............................

149



IBIDS Database

................................
................................
................................
..

150

Alzheimer’s News and Information

................................
................................
..........

152

E
-
Mails and Newsletters about Alzheimer’s Disease

................................
.............

153



American Health Assistance Foundation

................................
...........................

154



Alzheimer’s Association
................................
................................
......................

155



The Alzheimer’s Disease Education and Referral Center

................................
.

156

E
-
Mai
ls and Newsletters for Caregivers

................................
................................
..

158



Caregiver.com

................................
................................
................................
....

160



Family Caregiver Alliance

................................
................................
...................

161



National Family Caregivers Association

................................
.............................

163



Empowering Caregivers

................................
................................
.....................

164

Listservs

................................
................................
................................
....................

166



Alzheimer’s Listserv

................................
................................
............................

167



Alzheimer’s Caregiving

................................
................................
.......................

168

Medical News

................................
................................
................................
............

169



Alzheimer’s Association
................................
................................
......................

171



Reuters News Service

................................
................................
........................

173



Yahoo News Alert

................................
................................
...............................

174



HealthDay

................................
................................
................................
...........

175


6



MEDLINEplus (National Library of Medicine)
................................
.....................

176



Alzheimer’s

Disease Treatment and Research News
................................
........

177



DocGuide.com

................................
................................
................................
....

178

Medical Journals
................................
................................
................................
.......

180



Journal of Alzheimer’s Disease

................................
................................
..........

182



Journal of Neurodegeneration and Regeneration

................................
.............

183



MEDLINE/PubMed (National Li
brary of Medicine)

................................
.............

184



AMEDEO: The Medical Literature Guide

................................
...........................

185



7

Disclaimer


All information contained in this guide is intended solely for educational
and inf
ormational purposes. This guide provides information that should
not be construed as medical advice. Medical advice and guidance,
including treatment decisions, should always be obtained from a
physician or other licensed health care professional. Patient2
Patient,
LLC, does not assume responsibility for the appropriate use of or
accuracy of any medical, health, privacy, or other information contained
in this guide or in any of the sites listed in this guide. The user
understands that Patient2Patient is not
a medical provider and agrees to
hold Patient2Patient, LLC, harmless from any and all claims or actions
arising from the use of or reliance on this guide.

About This Guide

How to Use this Guide

Privacy Policies

This Alzheimer’s WebGuide is the product of hundreds of hours of research, development and
review by the staff of Patient2Patient. The Web sites in this guide have been selected using a
proprietary method that incorporates m
edical credibility, comprehensiveness, usability, format,
style and tone.

The purpose of this guide is to help you to easily and successfully find the best information and
resources on Alzheimer’s disease.

Please take a few minutes to read the directions
below. This will help you to understand the best
way to make use of this WebGuide to locate the information you are seeking.

Also, if you would like to increase the size of the type throughout this guide, on most systems you
can do this through the menus a
t the top of your screen. Where the page size indicates “100%”
simply replace 100% by typing in 115%. Then press the “Enter” key on your keyboard.

TABLE OF CONTENTS

The contents are arranged by topic areas that relate to the major areas of concern to Alzhe
imer’s
patients and caregivers. The topic areas are:

DIAGNOSIS AND TREATMENT DECISIONS

TOOLS

SUPPORT

RESOURCES

COMPLEMENTARY / ALTERNATIVE THERAPIES

ALZHEIMER’S NEWS AND UPDATES

Each topic area in the table of contents is further divided into sections of i
nterest, as follows:


8

DIAGNOSIS & TREATMENT DECISIONS

Disease and Condition Background

Treatments

Specialty Doctors

Specialty Hospitals

Clinical Trials


TOOLS


Medical Dictionaries and Encyclopedias

Diagnostic and Lab Test Glossaries

Medication Informat
ion

Drug Interaction Databases


SUPPORT

Early Onset Alzheimer’s Patients

Caregiver Resources

Local and Online Support Groups

Individual’s Web Sites


RESOURCES

National Organizations

Insurance Information

Medication Assistance Programs

Benefits Programs

Fr
ee Airline Programs (travel assistance)


COMPLEMENTARY/ALTERNATIVE THERAPIES

Complementary and Alternative Medicine

Diet and Nutrition

Herbal Databases



ALZHEIMER’S NEWS AND UPDATES

E
-
mails and Newsletters about Alzheimer’s Disease Information

E
-
mails and

Newsletters for Caregivers

Listservs

Medical Journals

Medical News





9



How to Use This Guide


TOPIC AREAS

This WebGuide is “interactive,” that is, you can “click” on a
topic area

in the table of contents
(such as Diagnosis and Treatment Information) an
d go right there. Each topic area has
introductory text that tells you about the topic and what the different sections within it contain.
Here is an example of a topic area:




Diagnosis and Treatment
Decisions



When you are first diagnosed it is important to understand your condition as well as the options
open to you in terms of treatment. Here you’ll find the latest information on the condition’s
Diagnosis

and what it

means. There are sites with both general and the most current
Treatment

information, so you can actively participate in treatment decisions at any stage of your therapy.
Don’t have a
Specialist
or a

Treatment Center

that specializes in Alzheimer’s treatme
nt? There
are two sections to aid you in your search for that help. And if you’re seeking the latest in therapy,
you might explore the option of participating in a
Clinical Trial
.

Disease and Condition Background

Treatment Information

Specialty Doctors

Specialty Hospitals

Clinical Trials



10

SECTI ONS

By clicking on to any of the
sections

(such as Disease and Condition B
ackground) you can go
directly to that section. Each section contains an Introduction that tells you about the information
you will find in that section. The introduction also informs you about the information you will find in
the Web sites we have selecte
d. You will also find a list of the Web sites with bullet points
highlighting each site’s key features. It looks like this:



Disease and Conditi
on
Background


Perhaps the only thing harder than living with a chronic condition is living with that condition in
ignorance. What is this disease? What symptoms commonly occur? What else should you know as
a patient or as a caregiver?

One of the greatest
advantages for those living with Alzheimer’s disease today is the wealth of
information available via the Internet on all aspects of this condition. That’s what the sites we’ve
chosen here provide. You’ll find answers to a wide range of questions. There’s
historical
background on the disease’s discovery and evolution of treatment methods. You’ll find information
on the symptoms that generally occur

along with a reminder not to assume that anyone
experiences all symptoms (because this is seldom the case).

Th
ere are discussions of the age at
which Alzheimer’s generally starts, how it evolves and much more.

Understand one thing, however. No matter how accessible you find this information, you should
never try to use this material as a substitute for a doctor’s

expertise. Instead, use your enhanced
understanding of Alzheimer’s as a bridge to better communications with doctors, therapists and
other medical professionals

not to replace them.

IN THIS SECTION
(Click on an item to jump to that information.)

The Alzheimer’s Association




Very thorough overview of Alzheimer’s disease



Ten warning signs of Alzheimer’s



Free 24
-
hour helpline: 1
-
800
-
272
-
3900



Straightforward, easy
-
to
-
understand style

Alzinfo.org




Very thorough overview of Alzheimer’s disease, including how it’s diagnosed



Warning signs and symptoms of Alzheimer’s



Reassuring, easy
-
to
-
navigate site



11

SI TE PAGES

Within each section we provide you with a selection of at least three Web sites. The sites we’ve
chosen offer you a va
rying range of content. There’s material that takes a very friendly tone vs. a
more impersonal one; information presented in simple language vs. the extremely technical.
We’ve generally listed sites so that they range from simple tone and basic information

to the more
complex.

One of the great advantages of the Internet is that information on Web sites is constantly being
revised and updated. However, this can also be a disadvantage, since a Web site may change its
navigation or its site content on at any
time. We have done our best to provide you with the most
current information and links. And one of our criteria for selection is to include Web sites that tend
to be more “stable.” It’s also the reason why we’ve made sure to give you more than one site in
any section.

The
site pages

have been developed by information design and usability experts to make them
easy to use and understand. This is how they work:

TOP OF THE PAGE

The top of each
site page

contains the section it appears in, the name of the site,
the
URL
, two
sets of bullet points, a graph and a descriptive paragraph. In addition you can click on the top of
the
site page

to go back to the main table of contents or to the section table of contents: The
top
level of bullet points

gives the site’s hig
hlights.
The
second level of bullet points

provides you
with details on who sponsors the site, their affiliation and how the site is funded.



12


The
descriptive paragraph

summarizes the bullet points and provides further details and
i
nformation about the site.

The
graph

provides a quick visual guide of the site’s relative complexity in terms of level of
material and the navigation, the tone of its content and the depth of its material.


MI DDLE OF THE PAGE

The middle section of the site

page contains the
Areas of Interest
, which describe the most
useful information on the site.

The
How to Find It

section provides you with a link to the home page of the Web site you’re
considering. It also gives you step
-
by
-
step directions on how to get
to the information outlined in
the
Areas of Interest
. For both legal and practical reasons we cannot link to a site’s interior
pages (known as deep linking.):


Please Note:



You must be online in order to link to the Web site’s home page



When you click on t
he link, the Web page will open and fill your screen. On most browsers, to
view further navigation directions in our guide, simply reduce (click on the [
-
] button on the top
right side of your screen) the Web page and read the directions. You can then rest
ore the
Web page by clicking on the Web page button that appears on the bottom of your screen.

AREAS OF INTEREST

About Alzheimer’s

How to Find It

Go to this section to get a good overview of the
d
isease. It explains causes and risk factors and
lists ten warning signs. Under diagnosis, you can
learn what tests are conducted to determine if
someone has possible or probable Alzheimer’s.
And they explain the difference between the two.

1.

Go to the home p
age at:
www.alz.org


2.

Using the top navigation bar select “About
Alzheimer’s”

1.


NIA Report

How to Find It

You can link to the National Institute on Aging’s
2001
-
2002 Alzheimer’s Disease Progress Report
through this grou
p’s home page. The report
provides perspective on the public health impact of
the disease, and summarizes current info on the
causes, risk factors and possible preventive
strategies.

1.

Go to the home page at:
www.alz.org


2.

Click on box titled “Research Advances:
National Institute on Aging
Alzheimer’s Disease
Progress Report


2.




13

BOTTOM OF THE PAGE

The bottom section of each
site page

contains a
Credentials

section that gives you information
on the individuals or the organization that ha
s produced the content for the Web site. It may also
contain information about the health editors or medical professionals who reviewed the content
that appears on the site.

In the
Privacy Policy

section you will find a portion of the site’s privacy poli
cy that details how
they handle personal information. At the bottom of the page you will see a listing of

any

other
places in our WebGuide where the site appears. You can click on one of these other locations to
go to that section of our WebGuide:

CREDENTI ALS

The material found on this site is either written by doctors associated with the organizations or information from such
places as the
National Library of Medicine and the National Institute of Neurological Disease and Stroke.

PRI VACY POLI CY

The Alzheimer’s Association’s
Privacy Policy

contains this information:


“The Alzheimer’s Association is committed to protecting the privacy of its u
s敲e⸠䥮f潲m慴a潮⁧ t桥re搠dy⁴ 攠
Association is used to monitor our site’s effectiveness and to respond to your questions and requests.

"Through this site we collect information about the domain name of a visitor’s server (i.e., the name of the Internet
s
ervice provider’s computer that funnels traffic to the Internet) but use it only for measurement purposes. We do not
慵瑯t慴ac慬ly⁣潬l散琠t
J
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"The Alzheimer’s Association does not sell, trade, or rent personal information about its Web site users. However, if a
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J
m慩l⁵ ⁡
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visi瑩n朠gr潭⁡ 摯m慩測nn潴oi湦o
rm慴a潮渠n湤ivi摵慬 畳敲eK


J
m慩l⁡摤r敳s敳⁰牯vi摥d⁴ ⁵ ⁡牥⁵ 敤 瑯tr敳p潮搠t漠牥煵敳瑳⁡ dⁱ 敳瑩o湳⁦r潭 r⁦敥摢慣k f潲msⰠI潬ls⁡ d
摩r散瑥t⁥
J
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J
m慩l⁢畬l整i渠lis瑳K

"You may receive periodic mailings from the Alzheimer’s Association via the U.S. mail. If you do not wish to receive
s畣栠h慩li湧sⰠ灬e慳攠e整e畳湯w⁢y⁥
J
m慩lin
朠畳⁡
i湦潀alz⹯牧
⸠ml敡s攠灲潶id攠yo畲⁦畬l慭攬em慩lin朠g摤r敳s
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"By using the Alzheimer’s Association Web site, you consent to the co
ll散瑩潮 慮搠畳攠ef⁴ 攠i湦潲o慴a潮⁤ scri扥搠
慢ov攮eAny⁣h慮g敳⁴ ⁴桩s⁰ licy 睩ll 扥⁰潳瑥t 灲楯r t漠o桥ir⁩m灬敭敮瑡ti潮K
?


(For full privacy policy information, click on “Privacy Policy” at the bottom of the home page,
睷眮wlzK潲o


The Alzheimer’s Association site can also be found in:
瑲敡瑭敮t

living with alzheimer’s

c慲敧av敲⁲敳潵rc敳

l潣al
慮搠潮lin攠e異灯r琠tro異s

湡瑩潮al 条niz慴a潮s

e
J
mails and newsletters about alzheimer’s

m敤ic慬ews



14



About

Privacy Policies


A Web site’s privacy policy can be very complex and may take many pages to explain in detail.
Because most people are concerned with what a Web site might do with their personal
inf
ormation we include a link to the Privacy Policy of ever
y website included in this WebGuide.

When a site does not have a stated privacy policy, we tell you that as well.

You may also want to know

if a Web site belongs to a health information organization that
requires its members to follow certain standards fo
r health content and privacy. If that is the case,
when you go to the Web site you will see theses organizations’ membership seals. They look like
this:




By clicking onto the membership seals displayed on a Web site you can learn more about the
specific healt
h content and privacy policy standards.

Most sites will put a “cookie” into your computer that allows them to identify where you go and
what you do on their site. The cookie does not affect your computer. Most Web sites use the
information only to understa
nd what users are doing on the site, not to try to identify you. Most
sites will also track your IP address, which is your unique user address associated with your
computer and Internet provider. Again, most Web sites use this for general information purpo
ses.
We do not include this and other information in our privacy policies, so if you have
any

questions,
you should use the navigation we provide to review that particular site’s privacy policies.

Please Note:



Information on a Web site, including their pri
vacy policies, can change at any time. If you have
any concerns about your privacy, you should
always

check a Web site’s privacy policy.



Any information you provide in an online forum or chat group will not be confidential. The
same is true of e
-
mails as t
hey can be intercepted and read by third parties.



We
cannot

guarantee

the accuracy of the privacy policy information contained on a Web site
or

that a Web site is following their stated policy.

FI NAL NOTE

Ultimately, the purpose of this guide is to help ev
ery one of you coping with Alzheimer’s disease,
patients AND caregivers, to find your way through the many medical concerns and other issues
that confront you.

We trust that this guide will help you find the information you need, so that you can place you
r
attention on living life to the fullest.


15

We wish you good health.

The Staff of Patient2Patient.

Back to Main Contents




16






Diagnosis and Treatment
Decisions



When you are first diagnosed it is important to understand y
our condition as well as the options
open to you in terms of treatment. Here you’ll find the latest information on the condition’s
Diagnosis

and what it means. There are sites with both general and the most current
Treatment

information, so you can activel
y participate in treatment decisions at any stage of your therapy.
Don’t have a
Specialist
or a

Treatment Center

that specializes in Alzheimer’s treatment? There
are two sections to aid you in your search for that help. And if you’re seeking the latest in
therapy,
you might explore the option of participating in a
Clinical Trial
.

Disease and Condition Background

Treatment Information

S
pecialty Doctors

Specialty Hospitals

Clinical Trials



PAGE
16

©

2002, Patient2Patient LLC, All Rights Reserved



17



Disease and Condition
Background


Perhaps the only thing harder than living with a chronic condition is living with that

condition in
ignorance. What is this disease? What symptoms commonly occur? What else should you know
as a patient or as a caregiver?

One of the greatest advantages for those living with Alzheimer’s disease today is the wealth of
information available via

the Internet on all aspects of this condition. That’s what the sites we’ve
chosen here provide. You’ll find answers to a wide range of questions. There’s historical
background on the disease’s discovery and evolution of treatment methods. You’ll find
info
rmation on the symptoms that generally occur

along with a reminder not to assume that
anyone experiences all symptoms (because this is seldom the case).

There are discussions of
the age at which Alzheimer’s generally starts, how it evolves and much more.

Understand one thing, however. No matter how accessible you find this information, you should
never try to use this material as a substitute for a doctor’s expertise. Instead, use your enhanced
understanding of Alzheimer’s as a bridge to better communicati
ons with doctors, therapists and
other medical professionals

not to replace them.

IN THIS SECTION
(Click on an item to jump to that information.)

The Alzheimer’s Association

19



Very thorough overview of Alzheimer’s disease



Ten

warning signs of Alzheimer’s



Free 24
-
hour helpline: 1
-
800
-
272
-
3900



Straightforward, easy
-
to
-
understand style

Alzinfo.org

21



Very thorough overview of Alzheimer’s disease, including how it’s
diagnosed



Warning signs and sym
ptoms of Alzheimer’s



Reassuring, easy
-
to
-
navigate site

MayoClinic

22



Alzheimer’s Center gives solid overview of condition including info on
early
-
onset Alzheimer’s



Ask a Specialist


18



Warm, understanding tone

WebMD

25



Good info for those newly diagnosed



Updated Alzheimer’s news



Ten questions to ask your doctor about Alzheimer’s

MEDLINEplus (National Library of Medicine)

27



World’s largest medical library



Links to general
Alzheimer’s info and news updates from sites worldwide



Has material in Spanish


19

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SECTION
: Diagnosis and Treatment Decisions: Disease and Condition Background

Back to Main Contents


䉡捫⁴o⁄楳i慳攠慮a⁃ d楴楯i⁂慣歧roud


Alzheimer’s Association

www.alz.org




Very thorough overview of Alzheimer’s
disease



Ten warning signs of Alzheimer’s



Free 24
-
hour helpline: 1
-
800
-
272
-
3900



Straightforward, eas
y
-
to
-
understand style





Site maintained by the Alzheimer’s Association, a
national, nonprofit organization

The Alzheimer’s Association is a good place to begin studying Alzheimer’s disease. The disease
and condition information is easy to understand and th
orough. That’s not surprising given that the
Alzheimer’s Association
states that it is the leading voluntary health organization in Alzheimer
care, support, and research.

And because
it was founded by seven caregiver/family
-
support
groups from around the U
S in 1979,

the information on its Web site is geared to both patients and
caregivers. Rather than warm and fuzzy, the tone is straightforward all the way.

AREAS OF INTEREST

Alzheimer’s

Disease

How to Find It

Go to this section to get a good overview of th
e
disease, its possible causes, and treatments. It
explains causes and risk factors and lists ten
warning signs. Under diagnosis, you can learn what
tests are conducted to determine if someone has
possible or probable Alzheimer’s. And they explain
the diff
erence between the two. This site also offers
an interactive tour, “Inside the Brain.”

1.

Go to the home page at:
www.alz.org


2.

Using the main navigation bar, scroll over
“Alzheimer’s Disease” and choose “Overview”

3.

From the

“Overview” page, you can explore
“What is Alzheimer’s?,” “Diagnosis,”
“Treatments,” an interactive tour, and more

4.

To take the interactive tour, scroll over
“Alzheimer’s Disease” and choose “Inside the
Brain: An Interactive Tour”

Free 24
-
Hour Helpline: 1
-
800
-
272
-
3900

How to Find It

This free 24
-
hour, 7
-
day, toll
-
free helpline provides
information, referrals, and support in 140
languages. The helpline serves people with
memory loss, caregivers, health care professionals,
and the public, by connecting you w
ith a
specialized, trained staff.

1.

Call direct to 1
-
800
-
272
-
3900 (TDD: 1
-
866
-
403
-
3073)

2.

You can also find the number on the home page
at:
www.alz.org


3.

For more information about the service, select
“About Us” from the top

of the homepage

4.

Select the blue link “24/7 Helpline”




20

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CREDENTI ALS

The material found on this site is either written by doctors associated with the organization or
information from such places as the National Library of Medicine and the National Institut
e of
Neurological Disease and Stroke.
A complete list of the Association’s Medical and Scientific
Advisory Council can be found by clicking on the “About Us” link.

PRI VACY POLI CY

The
Alzheimer’s Association’s Privacy Policy can be found by c
licking on “Sec
urity and Privacy
Policy” at the bottom of the home page,

www.alz.org


The Alzheimer’s Association site can also be found in:
treatment
,
living with Alzheimer’s
,
caregiver resources
,
local and online support groups
,
national organizations
,
e
-
mails and
newsletters about Alzheimer’s
,
medical news

Back to Main Contents



䉡捫⁴o⁄楳i慳攠慮a⁃ d楴楯i⁂慣歧ro
畮u


SECTION
: Diagnosis and Treatment Decisions: Disease and Condition Background

Back to Main Contents


䉡捫⁴o⁄楳i慳攠慮a⁃ d楴楯i⁂慣歧roud


Alzinfo.org

www.alzinfo.org




Thorough overview of Alzheimer’s disease,
including diagnosis info



Warning signs and symptoms of Alzheimer’s



Reassuring, easy
-
to
-
navigate site




Site maintained by the Fisher Center for
Alzheimer’s Research Foundation
, a nonprofit
organization



Dr. Paul Greengard, director of the Center, won the
2000 Nobel Prize in Medicine

Alzinfo.org is the Web site of the Fisher Center for Alzheimer’s Research Foundation, which is

dedicated to the cause, care and cure of Alzheimer’s.

You’ll find a comprehensive overview of
Alzheimer’s disease including a list of the warning signs, diagnosis information and a video
showing what Alzheimer’s does to the brain. This site has an extensive resource database for
locating doctors, care facili
ties, government programs and other kinds of services. All the
information is presented in a warm, reassuring manner. Even the scientific research data is easy
to grasp, offering a good overview of what’s currently happening in the primary areas of researc
h.


21

AREAS OF INTEREST

Understanding Alzheimer’s

How to Find It

Go to this section to get a good overview of
Alzheimer’s disease. You’ll find a list of the warning
signs and symptoms and explanations of the
various tests doctors use to diagnose this
conditi
on. You can even view a brief video on what
happens to the brain with Alzheimer’s.

1.

Go to the home page at:
www.alzinfo.org


2.

Using the navigation bar on the top, select
“Alzheimer’s Disease”

3.

This will bring you to “U
nderstanding
Alzheimer’s Disease,” which lists the sites many
resources

4.

To view the video, click “Watch Now” on the
right side of the home page, at:
www.alzinfo.org



Research

How to Find It

You don’t have to be a
physician or scientist to
understand the research data presented at this site.
Find information on the probable causes of
Alzheimer’s disease, including genetic and
non
-
genetic risk factors. This area also includes

information on the importance of an early

diagnosis, which is when drug treatments are most
effective.

1.

Go to the home page at:
www.alzinfo.org


2.

Using the navigation bar on the top, select
“Alzheimer’s Research”


CREDENTI ALS

The Fisher Center for Alzheimer
's Research, at The Rockefeller University in New York City, is
headed up by Nobel Laureate Paul Greengard, PhD. A scientific advisory board made up of eight
scientists distinguished in the field of Alzheimer's disease counsels the foundation's board
regar
ding research projects and expenditures.

PRI VACY POLI CY

Alzinfo.org’s
Privacy Policy

can be found by

clicking on “Privacy Policy” at the bottom of the home
page
,
www.alzinfo.org
.


Alzinfo.org site can also be found i
n:
treatment
,
specialty doctors
,
specialty hospitals
,
caregiver
resources
,
and national organizations

Back to Main Contents



䉡捫⁴o⁄楳i慳攠慮a⁃ d楴楯i⁂慣歧roud











SECTION
: Diagnosis and Treatment Decisions: Disease and

Condition Background

Back to Main Contents


䉡捫⁴o⁄楳i慳攠慮a⁃ d楴楯i⁂慣歧roud



22

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.....….



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........



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.Difficult

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MayoClinic

www.mayoclinic.com




Alzheimer’s Center gives solid overview of condition
including info on early
-
onset Alzheimer’s



Ask a Specialist



Warm, understanding tone




Owned and maintained by the Mayo Foundation for
Education and Research, associated with t
he world
-
renowned Mayo Clinic



Charitable, not
-
for
-
profit organization based in
Rochester, Minnesota



Web site partially supported by commercial advertising

The Mayo Foundation’s mission is to provide the best care to every patient, every day, through
integr
ated clinical practice, education and research. For the Alzheimer patient and caregiver, this
is a great place to begin researching the disease. You’ll find medically reliable, up
-
to
-
date
information on the disease by physicians who practice in that field.

Besides presenting a solid
overview, the site features more in
-
depth articles and provides a venue to Ask A Specialist
questions. The clear, easy
-
to
-
grasp language makes this site highly accessible.


AREAS OF INTEREST

Alzheimer’s Center

How to Find It

Th
is center features basic information about
Alzheimer’s, its treatment and symptoms, as
well as information on helping others cope.
General information on the disease addresses
such topics as “Is it in your genes?” “Early
-
onset Alzheimer’s,” and many more t
argeted
areas of interest. You can also take the
“Alzheimer’s Quiz: Diagnostic Clues” to help
you “separate fact from fiction” in diagnosing
your condition.


1.

Go to the home page at:
www.mayoclinic.com


2.

Using the t
op navigation bar, click on
“Diseases & Conditions”

3.

Under “Disease & Condition Centers,” click
on “Alzheimer’s”

4.

Select your area of interest on the left side

5.

To take the quiz, select “Alzheimer’s Quiz:
Diagnostic Clues” from the lower middle of
the “Alzhei
mer’s Center”


Ask A Specialist

How to Find It

You can ask your own questions as well as
find the answers to personal questions about
Alzheimer’s from other readers in “Ask a Mayo
Clinic Specialist.” The answers are provided by
Paul Takahashi, M.D., a co
nsultant for the
Department of Medicine, Division of
Community Medicine, and a specialist in
Geriatrics.

1.

Go to the home page at
www.mayoclinic.com


2.

On top menu bar, click on “Disea
ses
and
Conditions”

3.

Under “Dise
ase & Condition Centers,” click
on “Alzheimer’s.”

4.

Click on “Ask a Specialist” on the top menu
bar



23

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Intuitive ...........



............................

Difficult

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..........................

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Exhaustive


CREDENTI ALS

All material on the site is
material is gathered from scientific research and practicing physicians at
the Mayo Clinic.

The site is produced by
a team of writers, editors, nurses, physicians and
scientists associated with the Mayo Clinic.

PRI VACY POLI CY

The Mayo Foundation’s
Privacy Policy

can be found by
clicking on "Privacy Policy" at the bottom
left of the home page
,
www.mayohealth.org


The MayoClinic site can also be found in:
early onset Alzheimer’s

Back to Main Contents




䉡捫⁴o⁄楳ia
獥 慮a⁃ d楴楯i⁂慣歧roud





SECTION
: Diagnosis and Treatment Decisions: Disease and Condition Background

Back to Main Contents



䉡捫⁴o⁄楳i慳攠慮a⁃ d楴楯i⁂慣歧roud



Web
MD

www.webmd.com




Good info for those newly diagnosed



Continually updated Alzheimer’s news



Ten Questions to Ask Your Doctor




Largest commercial health
-
oriented Web site



Derives revenue from advertising and other f
or
-
profit
sources

If you or someone you love has recently been diagnosed
with Alzheimer’s, you’re probably scrambling for every bit
of information available. Here’s a place that should provide
some calm. WebMD’s “Alzheimer’s Health Center” section
is writt
en in a soothing voice and provides a solid foundation for understanding what’s happening
to you. “Newly Diagnosed” provides advice beginning with day one. And because you may not yet
know what to ask your doctor, print out a copy of the “Ten Important Que
stions to Ask Your
Doctor About Alzheimer’s” to take along on your next visit.


24

AREAS OF INTEREST

Alzheimer’s
Disease Health Center

How to Find It

Within the Alzheimer’s Disease Health Center,
you’ll find a comprehensive series of topics and
easy
-
to
-
under
stand overview of Alzheimer’s
disease. Topics include “Overview and Facts,”
“Symptoms and Types,” “Diagnosis and Tests,” and
many more categories to explore. Check out the
information for the newly diagnosed,
“The Ten
Questions to Ask Your D
octor


and othe
r
information on symptoms and diagnosis.

1.

Go to the home page at:
www.webmd.com


2.

Select “Health A
-
Z Home” from the top menu
bar

3.

Scroll down to “Alzheimer’s”

4.

The left side menu bar includes many topics to
choose from

5.

“N
ewly Diagnosed?” is on the right side; click
here to obtain the “Ten Questions to Ask Your
Doctor”

Search WebMD Health

How to Find It

This section features search results, which include
articles (predominately research
-
oriented from the
Cleveland Clinic)

of interest to Alzheimer’s patients
and caregivers.
A search for “Alzheimer’s Disease
Research” yields results on a wide range of topics
including “Early Alzheimer’s Tests,” herbal
supplement research results, “Preventing
Alzheimer’s.”


1.

Go to the home pag
e at:
www.webmd.com


2.

Place the search term “Alzheimer’s Disease
research” into the search box labeled “Get
Answers No
w.”

3.

Select articles listed under “Search Results”


CREDENTI ALS

The WebMD site states that: “The WebM
D content staff blends award
-
winning expertise in
medicine, journalism, health communication and content creation to bring you the best health
information possible. Our esteemed colleagues at
MedicineNet.com

are frequ
ent contributors to
WebMD and comprise our Medical Editorial Board. Our Independent Medical Review Board
continuously reviews the site for accuracy and timeliness.”

PRI VACY POLI CY

WebMD’s
Privacy Policy

can be found by clicking on

“Privacy Policy” at the b
ottom of the home
page,

www.webmd.com


The WebMD site can also be found in:
treatment
,
living with Alzheimer’s
,
local and online support
groups
,
diet and nutrition

Back to Main Contents



䉡捫⁴o⁄楳i慳攠慮a⁃ d楴楯i⁂慣歧roud



25

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...........

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.

...................

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: Diagnosis and Treatment Decisions: Disease and Condition Background

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䉡捫⁴o⁄楳i慳攠慮a⁃ d楴楯i⁂慣歧roud




MEDLINEplus (National Library of

Medicine)

www.nlm.nih.gov




World’s largest medical library



Links to general Alzheimer’s Disease info and news
updates from sites worldwide



Has material in Spanish






Online service of the National Library of Medicine

(NLM)



Supported by National Institutes of Health (NIH)



NIH is the U.S. government’s leading institution for
medical research

MEDLINEPlus is recognized as one of the world's best places for those not medically trained to
search for health information onlin
e. Its Alzheimer's section is extensive and easy to understand.
What’s particularly useful here, besides the solid, fundamental overview of the condition, is the
diagnosis/symptoms section. For instance, you can link to the Fisher Center for Alzheimer’s
Re
search Foundation to view a picture of a brain scan depicting the effects of the disease. Or
read the latest news from Reuter’s Health and elsewhere.

AREA OF I NTEREST

Alzheimer’s Disease

How to Find It

The NLM’s Alzheimer’s disease section links to
sites
worldwide for pertinent Alzheimer’s
information. For example, if you’re looking for
general information, you can be linked to the

Dolan DNA Learning Center”

site. MEDLINEplus
posts continually updated news items. And it
reminds you that you might find inf
ormation of
interest by examining related MEDLINEplus pages,
like “Dementia.”

1.

Go to the home page at:
www.nlm.nih.gov


2.

On the left of the home page, click on “Health
Information”

3.

Click on “MEDLINEplus”

4.

Click on “Heal
th Topics”

5.

Click on the letter “A” and scroll down to
“Alzheimer’s Disease”
or “Alzheimer’s
Caregivers”

6.

Click on the area that interests you, such as

Overviews”

or “Diagnosis/Symptoms”


CREDENTI ALS


26

The National Library of Medicine (NLM), a service of the

National Institutes of Health, is the
world's largest medical library.

PRI VACY POLI CY

The National Library of Medicine’s
Privacy Policy

can be found by clicking on

“Privacy” at the
bottom of the home page
,
www.nlm.ni
h.gov


The National Library of Medicine site can also be found in:
treatment
,
medical dictionaries and
encyclopedias
,
medical news
,
medical journals

Back to Main Contents



䉡捫⁴o⁄楳i慳攠慮a⁃ d楴楯i⁂慣歧roud



27







Treatment Information




Thanks to continuing advances in research,

there are treatment options for Alzheimer’s disease.
Some are mainstays, used for almost every Alzheimer’s patient. Others are supplemental
therapies, chosen to meet a patient’s individual needs.

That’s why, besides offering sites that discuss medications

to treat cognitive and behavioral
symptoms, we’ve included sites that explore other options. Here is where you and your loved
ones will find advice and information on dietary supplements and herbs, which may prove
beneficial. Some sites describe therapeut
ic activities to treat the agitation that so commonly
occurs in persons with Alzheimer’s.

Keep in mind two important things when

reviewing the treatments presented on these sites. First,
remember that some Web sites update their content more often than ot
hers. We therefore advise
you to review information from at least two sites to better ensure that you’re receiving the most
current treatment information. Second, no matter how current the information, it’s still critical to
talk to your physicians to dete
rmine if a certain treatment option is right for you.

IN THIS SECTION
(Click on an item to jump to that information.)

The Alzheimer’s Association

31



Thorough overview of prescription medications



Info on treating behavi
oral symptoms



Vitamin E fact sheet and other alternative treatments



Free 24
-
hour helpline: 1
-
800
-
272
-
3900

Alzinfo.org

33



Thorough overview of Alzheimer’s treatments



Drug treatment, modifying the home and therapeuti
c activities information



Reassuring, easy
-
to
-
navigate site

WebMD

34



Good overview of Alzheimer’s treatment options



Comprehensive medications section



Carries news updates on treatment options


28


ME
DLINEplus (National Library of Medicine)

37



World’s largest medical library (includes a section in Spanish)



Links to treatment discussions at other sites



Continually updated with new links


29

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........................
Clinical

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Intuitive ...........…


........................

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Warm ..........…


................................
.

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Basic .....................…


.............

Exhaustive

SECTION
: Diagnosis and Treatment Decisions: Treatment Information

Back to Main Contents



䉡捫⁴o⁔r敡t浥t⁉湦or慴楯


Alzheimer’s Association

www.alz.org




Thorough overview of prescription medications



Info on

treating behavioral symptoms



Vitamin E fact sheet and other alternative
treatments



Free 24
-
hour helpline: 1
-
800
-
272
-
3900





Site maintained by the Alzheimer’s Association, a
national, nonprofit organization

Founded in 1980 by caregivers, the Alzheimer’s
As
sociation
states that it is the leading voluntary health
organization in Alzheimer care, support, and research
. You can find a good overview on
treatment options at this site, including how to treat behavioral symptoms. And there’s a list of
important ques
tions to ask your doctor when determining which treatment option to take.

AREAS OF INTEREST

Treatment Options

How to Find It

Go here for information on the standard
prescription medications used for treating
Alzheimer’s. You’ll learn why these medications

are
prescribed and some of their side effects. Click on
links to learn more about cholinesterase inhibitors
or Vitamin E treatment. Other issues discussed are
non
-
drug interventions

and the effectiveness of
alternative treatments such as dietary supplemen
ts
and herbs.

1.

Go to the home page at:
www.alz.org


2.

Using the main navigation bar, scroll over
“Alzheimer’s Disease” and choose “Treatments”

3.

Select from menu bar on left side of page for
treatment area

of interest


Reso
urces
-

Publications

How to Find It

You’ll find an abundance of treatment information
within the “
Publications” category. You’ll discover
an alphabetical listing of articles

many that relate
to treatment issues. This wide
-
ranging resource
page includes us
eful topics like “Safety at Home,”
“Medications,” and more.

1.

Go to the home page at:
www.alz.org


2.

Using the main navigation bar, scroll over
“Alzheimer’s Disease” and choose

Publications”

3.

Scroll the alphabetical

list of
topics in the center
of the page


30

Level of Material

Simp
le ............…


..........................

Clinical

Navigation

Intuitive ...............…..


..................

Difficult

Tone of Content

Warm ...........



................................
...

Cold

Depth of Material

Basic ......................…


...........

.Exhaustive

CREDENTI ALS

The material found on this site is either written by doctors associated with the organization or
information from such places as the National Library of Medicine and the National Institute of
Neurological Disea
se and Stroke.

PRI VACY POLI CY

The Alzheimer’s Association’s Privacy Policy can be found by c
licking on “Security and Privacy
Policy” at the bottom of the home page,

www.alz.org


The Alzheimer’s Association site can also
be found in:
disease and condition
,
living with
Alzheimer’s
,
caregiver resources
,
lo
cal and online support groups
,
national organizations
,
e
-
mails and newsletters about Alzheimer’s disease
,
medical news

Back to Main Contents



䉡捫⁴o⁔r敡t浥t⁉湦or慴楯


SECTION
: Diagnosis and Treatment Decisions: Treatment Information

Back to Main Contents



䉡捫⁴o⁔r敡t浥t⁉湦or慴楯


Alzinfo.org

www.alzinfo.org




Thorough overview of Alzheimer’s treatments



Q & A covers the most common treatment
questions



Reassuring manner, easy
-
to
-
navigate

site




Site maintained by the Fisher Center for Alzheimer’s
Research Foundation, a nonprofit organization



Dr. Paul Greengard, director of the center, won the
2000 Nobel Prize in Medicine

Alzinfo.org is the Web site of the Fisher Center for
Alzheimer’s Rese
arch Foundation, which is dedicated to the cause, care and cure of Alzheimer’s.
You’ll find comprehensive information on drug treatments and therapeutic activities for
Alzheimer’s disease. A question and answer section outlines the most common questions pe
ople
have about treatment. All the information, including scientific research data, is presented in a
reassuring manner and uses language that patients and their caregivers can easily understand.




31

AREAS OF INTEREST

Treatment

How to Find It

This section o
f Alzinfo.org gives you a good
overview of Alzheimer’s disease treatment options.
Below the list of main topics, such as “Alzheimer’s
Disease Introduction and Overview,”
“Communicating with a Person who has
Alzheimer’s Disease,” and “Therapeutic Activities
,”
common concerns are presented in a Question &
Answer format including broad topics like “Is there
a cure for Alzheimer’s Disease?” to more practical
questions like “How is Alzheimer’s Disease
treatment paid for?”

1.

Go to the home page at:
www.alzinfo.org


2.

On the top menu bar select “Alzheimer’s
Treatment”

3.

Main topics are listed in the center, with Q&A
format below. Click on the to
pic you would like
to learn

about


Research on Treatment

How to Find It

Go here for a

good idea of what research is
currently underway for treating Alzheimer’s
disease. New drugs, the status of an Alzheimer’s
vaccine, potential therapies in early development
and other experimental therapies are all discussed
in this section.

1.

Go to the home

page at:
www.alzinfo.org


2.

On the top menu bar select “Alzheimer’s
Research”

3.

Click on “Alzheimer’s Research on Treatment”


CREDENTI ALS

The Fisher Center for Alzheimer's Research, at The Rockefeller University in New

York City, is
headed up by Nobel Laureate Paul Greengard, PhD. A scientific advisory board made up of eight
scientists distinguished in the field of Alzheimer's disease counsels the foundation's board
regarding research projects and expenditures.

PRI VACY
POLI CY

Alzinfo.org’s
Privacy Policy

can be found by

clicking on “Privacy Policy” at the bottom of the home
page,

www.alzinfo.org
.


Alzinfo.org site can also be found in:
di
sease and condition
,
specialty doctors
,
specialty hospitals
,
caregiver resources
,
national orga
nizations

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䉡捫⁴o⁔r敡t浥t⁉湦or慴楯


SECTION
: Diagnosis and Treatment Decisions: Treatment Information

Back to Main Content
s


䉡捫⁴o⁔r敡t浥t⁉湦or慴楯



32

Level of Material

Simple .............


............................

Clinical

Navigation

Intuitive ......
.....


............................

Difficult

Tone of Content

Warm .................


..............................
Cold

Depth of Material

Basic .........……………..


........

Exhaustive

WebMD

www.webmd.com




Good overview of Alzheimer’s treatment options



Comprehensive medications section



Carries news updates on treatment optio
ns




Largest commercial health
-
oriented Web site



Derives revenue from advertising and other for
-
profit
sources

WebMD is a commercial Web site that provides objective
and credible health information. The Alzheimer’s Disease Center contains comprehensive and
easy to grasp information on the treatment of Alzheimer’s disease, including treatments for
behavioral symptoms. Go here to learn about the most commonly used medications and discover
what may be on the horizon in terms of potential treatments for Alzheime
r’s. You can usually find
news updates here as well.

AREAS OF INTEREST

Alzheimer’s: Treatment Options

How to Find It

The “Treatment and Care” section offers a
comprehensive, easy
-
to
-
understand overview of
key issues in the treatment of Alzheimer’s disease
.
Categorized by either Treatment or Care, you can
click through for more detailed information on a
wealth of topics including “Taking Medications to
Treat Alzheimer’s,” Treating Alzheimer’s Behavior
Problems,” and “Treating Psychiatric Illness.”

1.

Go to th
e home page at:
www.webmd.com


2.

On the top menu bar select “Health A
-
Z Home”

3.

Scroll down to select “Alzheimer’s Disease”

4.

On the Alzheimer’s page, on the left side under
“Alzheimer’s Disease Health Center” menu bar
selec
t “Treatment and Care”


CREDENTI ALS

The WebMD site states that: “The WebMD content staff blends award
-
winning expertise in
medicine, journalism, health communication and content creation to bring you the best health
information possible. Our esteemed coll
eagues at
MedicineNet.com

are frequent contributors to
WebMD and comprise our Medical Editorial Board. Our Independent Medical Review Board
continuously reviews the site for accuracy and timeliness.”

PRI VACY POLI CY

We
bMD’s
Privacy Policy

can be found by clicking on

“Privacy Policy” at the bottom of the home
page,

www.webmd.com


The WebMD site can also be found in:
disease and condition
,
living with Alzheimer’s
,
local and
online support groups
,
diet and nutrition

Back to Main Contents



䉡捫⁴o⁔r敡t浥t⁉湦or慴楯



33

Level of Material

Simple ...............................


..........

Clinical

Navigation

Intuitive ............…

.

.......................

Difficult

Tone of Content

Warm .....
............................


..............
Cold

Depth of Material

Basic ........
............……


..........

Exhaustive

SECTION
: Diagnosis and Treatment Decisions: Treatment Information

Back to Main Contents


䉡捫⁴o⁔r敡t浥t⁉湦
or慴楯



MEDLINEplus

(National Library of Medicine)

www.nlm.nih.gov




World’s largest medical library (includes a section in
Spanish)



Links to treatment discussions at other sites



Continually updated with new lin
ks




Online service of the National Library of Medicine (NLM)



Supported by National Institutes of Health (NIH)



NIH is the U.S. government’s leading institution for
medical research

MEDLINEplus is recognized as one of the world’s best
places for those not me
dically trained to search for health information online. It furthers
understanding by offering medical dictionaries and encyclopedias and health information in
Spanish. There’s a section on Alzheimer’s
disease management with extensive information on
presc
ription and nonprescription drugs. And the research area carries further articles on
prevention and treatment alternatives. However, the articles, which are collated from different
sources, including the National Institute of Neurological Disease and Strok
e and the National
Institute on Aging, can be somewhat clinical in presentation and, therefore, difficult for non
-
medically trained individuals to understand. N
ote: If you’re truly adventurous, there’s another
section of the NLM site called MEDLINE/PubMed
that will lead you to numerous clinical

and
thus highly technical

articles. (See it’s listing in this guide’s

Medical Journals
sections.)

Note: This is a free service. Users are required to create an account using their email address
and creating a passwo
rd.

AREA OF I NTEREST

Alzheimer’s
Disease Management

How to Find It

The Alzheimer’s disease section of MEDLINEplus
features a selection menu with comprehensive and
slightly more professionally oriented information on
Alzheimer’s disease. Check the
disease
management section for informa
tion on prescription
medications and treating behavioral symptoms.
You’ll find a wider variety of articles under
“Research” including topics such as
“Anatomy/Physiology,” “Financial Issues,” and
“Genetics.”

1.

Go to the home page

www.nlm.nih.gov


2.

On the left, click on “Health Information”

3.

Click on “MedLinePlus”

4.

Click on “Health Topics”

5.

Click on the letter “A" and scroll down to
“Alzheimer’s Disease”

6.

Click on “Alzheimer’s Disease”

7.

Select “Dis
ease Management” under “Learn
More”

8.

Browse under “Research” for more in
-
depth
articles


34

CREDENTI ALS

The National Library of Medicine (NLM), a service of the National Institutes of Health, is the
world's largest medical library.

PRI VACY POLI CY

The National
Library of Medicine’s
Privacy Policy

can be found by clicking on

“Privacy” at the
bottom of the home page
,
www.nlm.nih.gov


The National Library of Medicine site can also be found in:
disease and condition
,
medical
dictionaries and encyclopedias
,
medical news
,
medical journals

Back to Main
Contents



䉡捫⁴o⁔r敡t浥t⁉湦or慴楯


35




Specialty Doctors


Perhaps nothing is more important to you or your loved one’s continued well
-
being than obtaining
a specialist, an expert specifically versed in the dia
gnosis and management of Alzheimer’s. If
there is no such expert in your immediate area, it’s critical to find a doctor as close as possible.
We’ve included sites that can help you find a local expert and help you determine other things
about a doctor’s ba
ckground. Sometimes "background information" means a glimpse into a
doctor’s training and years of experience. Some of these sites can actually tell you whether a
doctor has ever been sanctioned.

One extra hint: Contact a local Alzheimer’s support group to

see if the members can steer you to
a specialist in your area that they’ve had experience with. (To find a support group, see other
sections of this guide:
Local or Online Support Groups
.)

IN THIS SECTION
(Click on an item to jump to that information.)

Alzheimer’s Disease and Education Referral Center

40



Lists
34

Alzheimer’s Disease Centers in 20 states



Each center’s director is an MD trained in neurology



Toll
-
free information hot line: 1
-
800
-
438
-
4380

American Medical Association

Doctor Finder

41



Search for doctors by name or specialty



Information on nearly every licensed U.S. physician



Almost 700,000 doctors listed, including non
-
AMA members

AIM DocFinder

43



Free database offers physician background & disciplinary information



Data comes from state licensing boards

Alzinfo.org

44



Database of medical specialists, home
-
care services and adult day care



General tips on where

to go for medical help



Clear
-
cut, easy
-
to
-
navigate site


36

Level of Material

Simple .............


............................

Clinical

Navigation

Intuitive .............


..........................

Difficult

Tone of Content

Warm .......................…


....................

Cold

Depth of Mat
erial

Basic ..........


...........................

Exhaustive

SECTION:

Diagnosis and Treatment Decisions: Specialty Doctors

Back to Main Contents


䉡捫⁴o Sp散楡ity⁄ 捴crs


The Alzheimer’s

Disease Education

and Referral Center

http://www.nia.nih.gov/alzheimers




Lists 34 Alzheimer’s Disease Centers in 20 states



Each center’s director is an MD trained in neurology



Toll
-
free information hot
line: 1
-
800
-
438
-
4380




Also referred to as the ADEAR Center



Funded by the National Institute on Aging



National Institute on Aging is part of the National
Institutes of Health

The National Institute on Aging (an agency of the National
Institutes of Health) c
urrently funds 34 Alzheimer’s disease
Ce
nters at major medical institutions in 20 states. Researchers at these centers are working to
translate research advances into improved care and diagnosis for Alzheimer’s disease patients.
At the same time, they’re f
ocusing on the program’s long
-
term goal

finding a way to cure and
possibly prevent Alzheimer’s disease. Take advantage of its toll
-
free hotline, which is staffed by
information specialists ready to answer your questions about Alzheimer’s disease Monday
thr
ough Friday from 8:30 a.m. to 5:00 p.m. EST.

AREA OF I NTEREST

AD Research Centers

How to Find It

The
34

Alzheimer’s Disease Centers listed here
offer a range of care: From diagnosis and medical
management to clinical trial opportunities and other
resource
s. You can access from this Web site the
postal address, phone numbers, e
-
mail addresses
and Web site addresses of each center. Each
center has a director of operations, who is an MD
trained in neurology. This director can make
referrals or assist you in l
ocating an expert in your
area of residence.
You can also call the free
hotline,
800
-
438
-
4380, to obtain information about
these centers (M
-
F 8:30 am
-
5:00 pm EST).

1.

Go to the home page at:
http://www.nia.nih
.gov/alzheimers


2.

Click on “AD Research Centers” in the lower
right menu bar with pictures

3.

Select from list of states