music as therapy - Foundation for Parkinson's and Neurological ...

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14 Νοε 2013 (πριν από 3 χρόνια και 6 μήνες)

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Walking with Parkinson’s with the
aid of Music 2010

John
Yonushonis







MY ENTIRE RIGHT SIDE IS SLOWER THAN
LEFT


I CANNOT SEQUENCE MY RT THUMB TO
MY RT FINGER


MY NIGHTTIME TREMORS ARE SUCH THAT
I CAN NOT DRINK A CUP OF COFFEE


I CAN NOT FLIP MY WRIST


I HAVE COMPLETELY LOST MY ABILITY TO
WRITE AND CAN NO LONGER READ
BOOKS


BUT I CAN PLAY THE NATIVE AMERICAN
FLUTE




RAISE THE AWARENES OF PARKINSONS
AND UNDERSTAND WHAT IT DOES TO
THE HUMAN BODY


TALK ABOUT MUSIC THERAPY AND
NATIVE AMERICAN FLUTE AS
ALTERNATIVE THERAPY


SPEAK PERSONALLY ABOUT MY WALK
WITH THE DISEASE


OPEN THE DISCUSSION TO ANY
QUESTION


PARKINSON’S IS A CHRONIC,
PROGRESSIVE, NEURODEGENERATIVE
DISORDER WHOSE SYMPTOMS INCREASE
OVER TIME AND HAS NO CURE


1 in 100 over 60 years of age


Average age of onset 60 years of age


15% diagnosed before 50 years of age


Slightly more men than women


Chronic progressive neurological disorder


Certain brain cells or neurons in the
substantia
nigra (SN)
die or are impaired


Those neurons produce dopamine


Responsible for coordinated movement and
balance


Circuits formed by living cells called neurons


100 billion neurons


A transmitter called an axon


Receptors called dendrites





Neurons not directly connected to one
another


Tiny gap between the transmitter end of one
cell and the receptor end of another cell


Gap is called a
synapse



Neurons act as a communication network


Neurotransmitters carry the message across
synapses from one neuron to another


This allows the
nervous system to
communicate with muscles and translate
thought into motion


There is a defect
in dopamine producing
neurons


They do
not properly produce and transmit
dopamine


The Messages
about balance, coordination and
movement are impaired


Decreased stimulation of the motor
cortex also
occurs


Planning, control and execution of voluntary motor
functions are impacted


Due to insufficient formation and action of
dopamine


PD is all about brain circuits


When one part is disrupted then the circuit
malfunctions causing too much or too little
movement.


Normally we don’t think about how it is
possible for our bodies to move


It just happens when we want it to!


Travels
from the SN to the
striatum


Initiates
movement


Controls movement and balance


Makes sure:



Muscles work smoothly,


Under control and


Without extra or unwanted movements






Transmitter end of SN neurons release dopamine into
the synapse


Fits into special receptors on receiving neuron


Message is passed along


After receiving cell is stimulated , excess dopamine is
released back into synapse


To fine tune movement the excess dopamine us broken
down in the synapse by an enzyme MAO
-
B


Important step in precise control of movement as too much or
too little disrupts balance between dopamine and another
neurotransmitter system
-

acetylcholine


SN
degenerates



decreased dopamine

production



Causes lack
of regulation
of the
movement

in the
control
centers in the brain



loss of control of movements




Cardinal signs become apparent at 70
-
80%
dopamine
loss



LETS LOOK AT THE SIGNS


Present in 70% of people


Involuntary movement


“Pill
-
rolling” movement


Most obvious at rest or when under stress


Lessens with intentional movement


Disappears with sleep


Slowness of movement


Incomplete movement, difficulty initiating
movements and sudden stopping of
ongoing movement
.


Loss of spontaneous or automatic
movement


Slowness may interfere with daily routines;
getting dressed, shaving or showering may
take much of the day
.


“Freezing”, small steps or shuffling gait


Significant problem and the most disabling
symptom.







Stiffness or inflexibility of the limbs and/or
trunk




Muscle tone is always stiff and does not relax


leads to decreased range of motion


Felt as “tightness” in limbs


Can cause pain and cramping



Abnormal postural reflexes make balance and
coordination difficult


Seen as a forward lean


Fall backwards


trouble keeping upright


Leads to falls


Stooped posture


Walk with series of quick small steps


Small handwriting


Changes in posture


stooped and lack of arm swing


Decreased facial expression


Speech changes


Difficulty swallowing and drooling


Depression/anxiety


Pain


Sleep disturbances


Constipation


Loss of sense of smell


Urinary frequency


Sexual dysfunction


Low blood pressure


Fatigue/loss of energy


Changes in mental function over time



No definitive blood test or x
-
ray


Medical history


Neurological exam


Rule out other conditions


Should see a Movement Disorder Specialist




neurologist who specializes in PD


Positive response to PD medication


Cause unknown
-

lots of theories


Environmental factors


rural living, well water, herbicide use and
exposure to pesticides



Genetic factors


15
-
20% have close relative with PD symptoms


Aging


wearing away of dopamine accelerated


Probably result of genetic predisposition coupled
with a yet unknown environmental factor



Quality of life


Best way to live with PD


Know about PD


Know about drugs and how they work


Willing to make life style changes


Good working relationship between person
with PD, their doctor and their family






When I was in elementary school, I will never forget
a story I read, and for the life of me, I hope someday to
remember its title. It was about a dog and it’s VISION
OF A ROOM with one door and what it felt like when
the door closed and it was alone. It could not open the
door, could not see through the door, could not see
around the door and, most of all,
could not do
anything

to change its destiny until the door

opened
again
. All the little dog could do was hope. All it could
do was work to overcome the fear that no one would
ever open the door again. All the little dog could do
was wait.





I have now talked to hundreds of people with
NEUROLOGICAL DISORDERS and their story
is the same: We all became the little dog in the
room with no way to open the door. We only
had fear to begin with, but with the help of our
friends, our fear turned to hope. FOR ME IT,
AND MY WIFE ANN that taught me that the
room I was in was no longer small. The room I
was in became a room with a window and then
it became ROOM WITH AN OPEN DOOR. The
flute brought me back into society.



RELAXATION


COORDINATION


BREATHING EXERCISE


SOCIAL STIMULATION


FUN


FOCUS ON NOW, TODAY




A BRAIN THAT ENGAGES IN MUSIC IS
CHANGED BY ENGAGING IN MUSIC


Dr Michael
Thaut





Began after World War I and World War II
when community musicians of all types, both
amateur and professional, went to Veterans
Hospitals around the country to play for the
thousands of veterans suffering both physical
and emotional trauma from the wars. The
patients' notable physical and emotional
responses to music led the doctors and nurses
to request the hiring of musicians by the
hospitals.


The Biochemical Theory


Music stimulates the cerebral cortex and
Autonomic Nervous System, which sends
vibrations and impulses through the body


The Entrainment Theory


Sounds are received through the human energy
field and entrain the body’s rhythms


The Metaphysical Theory


Music is a gift from God and connects people
together (
For example…
)

34



ADJUSTS THE INTERNAL RHYTHM OF AN
ORGANISM TO EXTERNAL FREQUENCIES
TO CREATE HARMONY



OUR BRAIN ENTRAINS THE FREQUENCY
AND RHYTHM OF SOUND TO ENHANCE
OUR NATURAL RHYTHM


IN PARKINSON’S THE ENTRAINMENT
ALLOWS PEOPLE TO DANCE WHO CAN
NOT WALK


the “ability to experience an
altered state

of


physical
arousal

and subsequent
mood


by processing a progression of musical notes
of


varying
tone
,


rhythm
, and


instrumentation


for a pleasing effect.



In the Mysteries the lyre was regarded as the secret
symbol of the human constitution, the body of the
instrument representing the physical form, the
strings the nerves, and the musician the spirit.
Playing upon the nerves, the spirit thus created the
harmonies of normal functioning


PYTHAGORAS set HARMONY to a mathematical
scale Pythagoras cured many ailments of the
spirit, soul, and body by having certain specially
prepared musical compositions played in the
presence of the sufferer


PROMOTES WELLNESS


ALEVIATES PAIN


MANAGE STRESS


OUTLET TO EXPRESS FEELINGS


IMPROVE COMMUNICATION


IMPROVE PHYSICAL COORDINATION


FORCES FOCUS ON TODAY




INCREASES THE ABILITY TO OVERCOME THE
DIFFICULTY GENERATING SEQUENCE


GIVES BACK RHYTHM


GIVES BACK TEMPO


GIVES BACK TIMING



John Phillips Sousa


Parkinson’s patients that cannot walk but can
dance


The loss of dopamine creates a lack of
synchronization of movement that music may be
able to somehow reorganize




My personal opinion: there is a rhythm in the
soul of mankind and is manifested internally,
universally similar but distinctively different in
everyone and can be touched by the Native
American Flute (remember Tony and his
Grandfather)


Next: a healthy mind creating a healthier brain


Music helps depression you can help those
with Parkinson’s


“It is the stagnation of our personal story,
maintaining a rigid definition of our own
meaningfulness and worth, coupled with a loss
of imagination, a lack of courage to face our
imperfections that defines depression, not just
a particular chemical change.


Left unattended (in Parkinson’s) this molecular
backdrop transmogrifies into a self fulfilling
paradigm


Those actively engaged…….have a slower
progression of the disease (Parkinson’s)”

MY PROMISE:

I WOULD NOT BE EMBARASSED BY THE
DISEASE

I WOULD TELL EVERY ONE ABOUT IT TO
INCREASE AWARENESS

I WOULD HELP MY BROTHERS AND SISTERS
WITH PARKINSON’S FFPNR


A


ALI


ALI


KLAGETOH


KLAGETOH HOGAN


FOUNDATION FOR PARKINSON’S AND
NEUROLOGICAL RESEARCH MISSION

A WORLD WITHOUT PARKINSON’S