Different Perspectives on Genetic

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11 Δεκ 2012 (πριν από 8 χρόνια και 7 μήνες)

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Different Perspectives on Genetic

Engineering


In this
writing
activity, you will consider ethical issues regarding a scenario about genetic
testing.



Directions:


1. Read the given

scenario regarding genetic testing and cystic fibrosis.


2. Write a respo
nse paper regarding genetic
screening and gene therapy

and the following scenario. Include
the following elements:

A
.

An introduction that includes:
what
genetic screening and

gene therapy

are as well as

a

brief
description

of cystic fibrosis.


B
.

What you

would do in this situation

and why

and

your feelings on the idea of genetic screening and
genetic engineering (feelings such as is it always beneficial, sometimes beneficial, ethical, not ethical,
etc.)



C.

A

position statement regarding the issues in th
is scenario from the perspective of two of the six
ind
ividuals listed on the back
. Your position statement needs to be why
you agree with one or both of
them or why you disagree with one or both you choose.

You may wish to use the quotation included
for ea
ch individual.
You can agree with both, disagree with both or agree with one and disagree with
one.

Make sure to tell why you agree or disagree with them
. Do not simply state that you agree or
disagree with them.



D
.

Address the following questions:



Who s
hould be responsible for answering these ethical qu
estions?
(Political leaders

such as
the president or govenors
? Individuals? Religious leaders? Lawyers?)

Why?




Should an issue such as the one presented here be regulated b
y
federal laws

(meaning
should the laws be the same for the entire country)

or
by state laws

(
meaning should each
state be allowed to make their own rules)
. Explain why you chose the one you did
.



Should there be
r
egulations enforced by a federal
agency such as the Federal Drug
Administration

(meaning should genetic screening and gene therapy be allowed for
everyone
?

Should it only be allowed if there is a genetic disorder within the family? Could

it
be used to “pick” the traits of your offspring?). Explain why you feel regulations should be in
place or why you think there should be no regulations at all.



What benefits does this technology offer us? What risks should
we
be aware of?


Format:



Your
paper

should be at l
east two

page
s

but no more than three
.




You should have at least four

paragraphs.



Write in your normal handwriting

or type using 12 point times new roman or calibri font



Put your name in the upper right hand corner
.



Center your title

(
if hand writing, put title at top of page)




PART 1

Scenario: Genetic Testing and Cystic Fibrosis

A coup
le has undergone genetic screening

and discovered that both of them are

carriers for cystic fibrosis, a
disease that causes

mucus

in the body to become thick and sticky. This glue
-
like mucus builds up and causes
problems in many of the body's organs, especially the
lungs and the pancreas
. People who have cystic fibrosis
can have serious breathing problems and lung disease. They can also have problems with nutrition, digestion,
growth, and development. There

is currently no cure for cystic fibrosis and the disease generally gets worse
over time.

Some specialists have

recommended against the couple having children, stating that cystic fibrosis
is a

serious disease that usually shortens an individual's life spa
n. On the other hand,

great advances have
been made in research, and people with cystic fibrosis are

now living longer lives of a higher quality than ever
before
.

The life expectancy for people with cystic fibrosis has been steadily increasing over the pas
t 40 years.
On average, people who have cystic fibrosis live into their mid
-
to
-
late 30s, although new treatments are
making it possible for some people to live into their 40s and longer.

In

addition, it's

possible that a cure for
cystic fibrosis could be f
ound within the next 25 years

and that gene therapy may become available at some
point in time.

The coupl
e is trying to decide if they should go ahead and have children or adopt

and is
interested in the viewpoints of

the people listed below.


PART 2

Individual Perspectives


Religious person:
“I am opposed to the manipulation of human genes for any

purpose. It’s just not right. Who are we
to be playing God?”


Bioethicist:
“I am undecided about the use of genetic engineering in reproductive

medicine.
What we want is to enjoy
the benefits of the technology while

minimizing the risk.”


Lawyer:
“I think we should accept human gene engineering, make it legal,

regulate it, and make sure it's done in a
responsible way.”


Expectant father with an inherited he
art condition that may be passed on to

children:
“Although the
technology to diagnose my child’s susceptibility to my

heart condition is available, it still is a scary piece of knowledge to
have in

reproductive decision making, and I’m not sure I want to g
o through with the

screening.”


Molecular biologist:
“I am in favor of genetic engineering for reproductive

purposes. It is just a better way of doing
what animal breeders and botanists

have already done to improve their livestock and agriculture.”


Eugeni
cist:
“Eventually it will be possible to pick genes for virtually any inherited

human characteristic. I support this
technology because it will make it possible

for parents to correct genetic defec
ts and improve the genes of
their

children.”


Vocabulary:


Bioethics
: The study of the ethical issues of biological research and applications,

especially in medicine.

Context: Scientists must consider
bioethics
to make appropriate decisions about some

medical procedures.


Biotechnology:

The techniques of managing
biological systems for human benefit.

Context: Advances in
biotechnology
allow scient
ists to manipulate genes
.



Ethics:

A system of moral principles

Context: Manipulating genes violates the
ethics
of some people.


E
ugenics
:
The science of improving the q
ualities of a breed or species by different

strategies, such as the careful selection of
parents or the use of genetic testing.

Context: Some people argue that designing traits for offspring is reminiscent of

eugenics.