4.

You can also call the free hotline, 800
-
438
-
4380
to obtain information about the centers

CREDENTI ALS

Alzheimer's Disease Research Centers

are funded by the National Institute on Aging, which is a
member of the U.S. government's National Institutes of Health.


37

Level of Material

Simple .........



...............................

Clinical

Navigation

Intuitive .............



.........................

Difficult

Tone of Content

Warm ............................…
.


..............

Cold

Depth of Material

Basic ......................…


............

Exhaustive


PRI VACY POLI CY

The Alzheimer’s Disease Education and Referral Center’s
Privacy Policy

can be found by

clicking
on "Policies" at the b
ottom of the home page,
http://www.nia.nih.gov/alzheimers
, and then
selecting “Privacy Policy.”


The Alzheimer’s Disease Education and Referral Center’s site can also be found in:
specialty
hospitals
,
clinical trials
,
national organizations
,
e
-
mails and newsletters about Alzheimer’s
diseas
e

Back to Main Contents



䉡捫⁴o Sp散楡ity⁄ 捴crs



SECTION:

Diagnosis and Treatment Decisions: Specialty Doctors

Back to Main Contents


䉡捫⁴o Sp散楡ity⁄ 捴crs



The American Medical Association

Doctor Finder

www.ama
-
assn.org




Search for doctors by name or specialty



Information on nearly every licensed U.S. physician



Almost

700,000 doctors listed, including non
-
AMA
members




Owned and maintained by the American Medical
Association



The AMA is one of the leading U.S. professional medical
societies

The AMA is one of the oldest professional societies for
medical doctors in the Un
ited States. The Doctor Finder
feature on its Web site allows you to check your doctor’s credentials by providing basic
professional information on virtually every licensed physician in the United States, including
Alzheimer’s specialists.

AREA OF I NTEREST


38

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Material

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...........................

Clinical

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Intuitive ..........….

.

........................

Difficult

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...................
Cold

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.............

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Doctor Finder

How to Find It

The AMA’s “Doctor Finder” allows you to find a
doctor by name
, location,

or general specialty (that
is, by “Neurology” or “Geriatrics” rather than
specifically by “Alzheimer’s disease”). Among the
info available for all physi
cians are: where they
attended medical school and took their residency,
their year of graduation, current office location and
phone number. For AMA member physicians there
is additional information including office hours,
practice philosophy and physician
achievements.

1.

Go to the home page at:
www.ama
-
assn.org


2.

Click on the link “DoctorFinder” on the top menu
bar

3.

Click on “Patients and Consumers Search for a
Physician” under “Patients” in the center of the
page

4.

Click
on “DoctorFinder”

5.

Follow instructions for the usage verification
(this is a website safety device)

6.

Accept Terms and Conditions

7.

Search for a doctor by name, location, or
specialty

CREDENTI ALS

All physician credential data have been verified for accuracy an
d authenticated by accrediting
agencies, medical schools, residency training programs, licensing boards and other data sources.

PRI VACY POLI CY

The AMA’s
Privacy Policy

can be found by clicking on

"Privacy Statement" at the bottom of the
home page,

www.ama
-
assn.org

Back to Main Contents



䉡捫⁴o Sp散楡ity⁄ 捴crs



SECTION:
Diagnosis and Treatment Decisions: Specialty Doctors

Back to Main Contents


䉡捫⁴o Sp散楡ity⁄ 捴crs


AIM DocFinder

www.docboard.org




Free database offers physician background and
disciplinary information



Data comes fro
m state licensing boards in all fifty
states




Created by the Administrators in Medicine and the
National Organization of State Medical and Osteopathic
Board of Directors



AIM is a nonprofit organization


39

AIM has access to medical examiners boards, medical bo
ards and boards of licensure
in all 50
states. Its Web site carries links to these boards, but the organization has saved you som
e work
by gathering information from these sites in its DocFinder section. The latter is designed to help
you determine whether

your physician has ever been disciplined. DocFinder is the only free,
online physician database in the nation that receives its source data directly from various
government and medical boards.

AREA OF I NTEREST

DocFinder

How to Find It

This database conta
ins the licensing and
disciplinary information of physicians and other
health care practitioners
in the United States.
Physician information includ
es any medical
malpractice suits, hospital disciplinary actions and
criminal convictions. It also offers more

basic
background data, including a physician’s license
number, medical school and current medical
license terms. The site tells you where to obtain
copies of public documents for a minimal charge.
To locate information about a particular doctor, you
will
need to know last name, location, or their
federal license number.

1.

Go to the home page at:
www.docboard.org


2.

Click on “DocFinder”
on the left side of the page

3.

Select the state for your search by scrolling
through s
tates on the right side menu

4.

Fill in the request form with your desired criteria
to locate a doctor or to find your current doctor

CREDENTI ALS

AIM’s members are executives on state medical and osteopathic boards, the government
agencies responsible for li
censing and disciplining medical doctors, osteopathic doctors and other
health professionals within their jurisdiction. These boards are also the source of licensure
information about doctors and are where consumers file complaints when problems occur.

PR
I VACY POLI CY

The Administrators in Medicine’s (AIM)
Privacy Disclaimer

can be found by clicking on

"Disclaimer" on the top menu bar on the home page at

www.docboard.org


Back to Main C
ontents



䉡捫⁴o Sp散楡ity⁄ 捴crs




SECTION:

Diagnosis and Treatment Decisions: Specialty Doctors

Back to Main Contents


䉡捫⁴o Sp散楡ity⁄ 捴crs



40

Level of Material

Simple ............…


..........................

Clinical

Navigation

Intuitive ...............…..


..................

Difficult

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................................
...

Cold

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............

Exhaustive

Alzinfo.org

www.alzinfo.org




Database of medical specialists, home
-
care
services and adult day care



General tips on where to go for medical help



Clear
-
cut, easy
-
to
-
navigate site




Site maintained by the Fisher Cen
ter for Alzheimer’s
Research Foundation, a nonprofit organization



Dr. Paul Greengard, director of the center, won the
2000 Nobel Prize in Medicine

Alzinfo.org is the Web site of the Fisher Center for
Alzheimer’s Research Foundation. The foundation is dedic
ated to attacking Alzheimer's disease
with a focus on “Cause, Care and Cure.” This site has an extensive resource database for
locating doctors, care facilities, government programs and other kinds of services. However, it
appears that the listings for spe
cialty doctors can be more or less extensive depending on the
geographic area you are searching. But that doesn’t mean many more specialists (and varied
specialists) don’t exist in your area; it simply means this database has accrued a limited number
of re
sources to date for your location.

AREAS OF INTEREST

Find Doctors and Other Services

How to Find It

Go to this section to get information and navigation
instructions on locating doctors using the site’s
database
. By supplying state, city or zip code, the
search engine

gives you a listing of doctors in that
area. (Note: Not only can you search for doctors
and facilities, but you can also search for physical
therapists, home health care agencies and a
variety of other useful resources.) You’ll also find in
t
his section a good description of the types of
doctors that treat Alzheimer's disease and what
you should know before choosing a doctor.

1.

Go to the home page at:
www.alzinfo.org


2.

Select “Alzheimer’s Resources” from t
he top
menu bar

3.

Click on “Medical and Continuing Care
Providers” from the menu in the center of the
page

4.

Select to search for specialists

5.

Follow the prompts to from “Doctors,” “Home
-
Care Services,” “Adult Day Care,” narrow your
search terms


CREDENTI ALS

T
he Fisher Center for Alzheimer's Research, at The Rockefeller University in New York City, is
headed up by Nobel Laureate Paul Greengard, PhD. A scientific advisory board made up of eight
scientists distinguished in the field of Alzheimer's disease counsel
s the foundation's board
regarding research projects and expenditures.

PRI VACY POLI CY


41

Alzinfo.org’s
Privacy Policy

can be found by

clicking on “Privacy Policy” at the bottom of the home
page,

www.alzinfo.org
.


Alzinf
o.org site can also be found in:
disease and condition
,
treatment
,
specialty hospitals
,
ca
regiver resources
,
national organizations

Back to Main Contents


䉡捫⁴o Sp散楡ity⁄ 捴crs




42






Specialty Hospitals


Hospitals and treatment

centers that boast special expertise in diagnosing and treating
Alzheimer’s disease offer a variety of benefits to patients and their caregivers. They’re excellent
places to find both doctors who are specialists in this area (see the
Doctors

section of th
is guide)
and support groups.

The sites we’ve listed here represent some of the fastest and easiest ways to find hospitals or
treatment centers near you that contain experts in diagnosing and treating Alzheimer’s disease.
One of the great things about the
centers found through the Web sites listed here is that many will
offer you a chance to find more than just expert doctors. You'll also find facilities with all sorts of
experts including physical therapists, dietitians, pharmacists and others. Some of the
se centers
may also be participating in cutting
-
edge clinical trials. (See the
Clinical Trials

section of this
guide.)

IN THIS SECTION
(Click on an item to jump to that information.)

Alzheimer’s Disease Education and Refe
rral Center

48



Lists
34

Alzheimer’s Disease Centers in 20 states



Each center’s director is an M.D. trained in neurology



Toll
-
free information hot line: 1
-
800
-
438
-
4380

American Health Assistance Foundation

49



Lists the to
p
ten neurology hospitals in the United States



Funds researc
h on age
-
related and degenerative diseases



Easy to navigate site

DoctorDirectory.com

51



Provides hospital contact information for all 50 states



Provides link
s to hospital Web sites, if available



Easy to navigate

Alzinfo.org

52



Database of medical facilities, specialists and other resources



General tips on where to go for medical help



Clear
-
cut, easy
-
to
-
navigate site


43

Directory of America’s Hospitals

54



Information on over 6,000 hospitals



Provides links to hospital’s website if available



Easy to navigate


44

Level of Material

Simple ...........…

...........................

Clinical

Navigation

Intuitive ..............
...…

....................
Difficult

Tone of Content

Warm .......


........................................
Cold

Depth of Material

Basic .....................…

…………
Exhaustive


SECTION
:

Diagnosis and Treatment Decisions
:

Specialty Hospitals

Back to Main Contents


䉡捫⁴o Sp散楡ity⁈ 獰楴a汳



The Alzheimer’s Disease Education and
Referral Center

http://www.nia.nih.gov/alzheimers



Lists

34 Alzheimer’s Disease Centers in 20 states



Each center’s director is an MD trained in neurology



Toll
-
free information hot line: 1
-
800
-
438
-
4380




Funded by the National Institute on Aging



National Institute on Aging is part of the National
Institutes of He
alth

The National Institute on Aging (an agency of the National
Institutes of Health) currently funds Alzheimer’s Disease
Centers at major medical institutions in 20 states. Researchers at these centers are working to
translate research advances into impro
ved care and diagnosis for Alzheimer’s disease patients.
At the same time, they’re focusing on the program’s long
-
term goal

finding a way to cure and
possibly prevent Alzheimer’s disease. Take advantage of its toll
-
free hotline, which is staffed by
informa
tion specialists ready to answer your questions about Alzheimer’s disease Monday
through Friday from 8:30 a.m. to 5:00 p.m. EST.

AREA OF I NTEREST

AD Research Centers

How to Find It

The
34 Alzheimer’s Disease Centers (ADC) listed
here offer a range of reso
urces including
opportunities

for volunteers to participate in drug
trials, support groups, clinical research projects and
other special programs: They also conduct basic
clinical and behavioral research and train scientists
and health care providers new t
o Alzheimer’s
disease research. Many ADCs have satellite
facilities, which offer diagnostic and treatment
services and collect research data in underserved
rural and minority communities.

1.

Go to the home page at:
http://www.nia.nih.gov/alzheimers

2.

Click on “AD Research Centers” on the right
side of the page, in the main menu

3.

Select

from list of states


CREDENTI ALS

The Alzheimer’s Disease Centers are funded by the National Institute on Aging, which is a
membe
r of the U.S. government’s National Institutes of Health.



45

Level of Material

Simple ......…


...............................

Clinical

Navigation

Intuitive ...



................................
...

Difficult

Tone of Content

Warm ................…


...........................

Cold

Depth of Material

Basic .....................…


.............

Exhaustive

PRI VACY POLI CY

The Alzheimer’s Disease Education and Referral Center’s
Privacy Policy

can be found by

clicking
on "Policies" at the bottom of the home page,

www.alzheimers.org
,
and then selecting “Privacy
Policy.”


The Alzheimer’s Disease Education and Referral Center site can also be found in:
specialty
doctors
,
clinical trials
,
national organizations
,
e
-
mails and newsletters about Alzheimer’s
disease

Back to Main Contents



䉡捫⁴o Sp散楡ity⁈ 獰楴a汳



SECTION
:

Diagnosis and Treatment Decisions
:

Specialty Hospitals

Back to Main Contents


䉡捫⁴o Sp散楡ity⁈ 獰楴a汳



American Health Assistance Foundat
ion

www.ahaf.org



Lists the top neurology hospitals in the United
States



Funds research on age
-
related and degenerative
diseases



Easy to navigate site




AHAF is a national nonprofit
organization

The American Health Assistance Foundation is a national,
nonprofit organization that funds research on age
-
related and degenerative diseases, educates
the public about these diseases and provides emergency financial assistance to Alzheimer's
d
isease patients and their caregivers. Its Web site lists the top neurology hospitals in the United
States as per the
U.S. News and World Report

magazine in
July 2006
.

AREA OF I NTEREST

Top Neurology Hospitals

How to Find It

Go here to review a list of the
top neurology
hospitals in the United States as per
U.S. News
and World Report’s

July 2006

issue. You can also
obtain additional contact information

about these
top hospitals, including their Web site addresses.

1.

Go to the home page at:
www.ahaf.org


2.

Click on “Alzheimer’s Disease Research” on the
right side menu

3.

Click on “Resources” on the left menu bar

4.

Click on “America’s Best Neurology and
Neurosurgery Hospitals”

CREDENTI ALS


46

Level of Material

Simple

..................…


....................

Clinical

Navigation

Intuitive ....



................................
...
Difficult

Tone of Content

Warm .....................….............



........

Cold

Depth of Material

Basic ...........................…


.......

Exhaustive

AHAF is one of America's leading supporters
of scientific and medical investigations into
Alzheimer's disease as well as several other conditions. Founded in 1973, AHAF has since
awarded more than $47 million in research grants to some of the most prominent scientists
working at universities, hospit
als and medical centers around the world.

PRI VACY POLI CY

The AHAF’s
Privacy Policy

can be found by
clicking on "Privacy" at the bottom of the home page,
www.ahaf.org


American Health Assistance Foundation site can also

be found in:
national organizations
,
e
-
mails
and newsletters about Alzheimer’s disease

Back to Main Contents



䉡捫⁴o Sp散楡ity⁈ 獰楴a汳





SECTION:
Diagnosis and Treatment Decisions
:

Specialty Hospitals

Back to Main Contents


䉡捫⁴o Sp散楡ity⁈ 獰楴a汳


DoctorDirectory
.com

www.
doctordirectory
.com



Provides hospital contact information for all 50 states



Provides doctor links for all 50 states



Easy to navigate




Site maintained by DoctorDirectory.com, Inc.



Based in Ashevi
lle, NC



Commercial Web site

Doctor Directory.com provides people with access to
information about hospitals and doctors in all 50 states. You

47

can readily locate hospitals or
doctors in your town or city in this easy
-
to
-
navigate site. Street
addresses and p
hone numbers are provided for hospitals. And if that hospital has a Web site, you
link directly to it from this site. More detailed information is available on the site about doctors
.

AREAS OF INTEREST

Hospital Locations

How to Find It

Using a simple sea
rch, you can find hospitals in
your general area. Many hospitals now have their
own Web sites, which are listed on
DoctorDirectory.com, along with their street
address and phone number. If y
ou want to
research doctors, you

can search by specialty or
state.

1.

Go to the home page at

www.doctordirectory.com



2.

Click on “Directory Services”

3.

Click on “Hospitals’ on left side of page

4.

Click on the state you wish to search

5.

Select the city or town for your hospital search

6.

Click on the hospital you wish to learn more
about

7.

If hospital has a Web site, click on the link to go
to that site


CREDENTI ALS

DoctorDirectory.com is a commercial Web site that provides its hospital and doctor directory as a
service to consumers.

PRI VA
CY POLI CY

DoctorDirectory.com does not list any privacy policy information
.

Back to Main Contents


䉡捫⁴o Sp散楡ity⁈ 獰楴a汳






SECTION:

Diag
nosis and Treatment Decisions: Specialty Hospitals

Back to Main Contents


䉡捫⁴o Sp散楡ity⁈ 獰楴a汳



48

Level of Material

Simple ............…

..........................

Clinical

Navigation

Intuitive ...............…..


...................

Difficult

Tone of Content

Warm ............



................................
.

Cold

Depth of Material

Basic ...................
...…


............

Exhaustive

Alzinfo.org

www.alzinfo.org




Database of medical facilities, specialists and
other resources



General tips on where to go for medical help



Clear
-
cut, easy
-
to
-
navigate site




Site maintained by the Fisher Center for
Alzheimer’s Research Foundation, a nonprofit

organization



Dr. Paul Greengard, director of the center, won the 2000 Nobel Prize in Medicine

Alzinfo.org is the Web site of the Fisher Center for Alzheimer’s Research Foundation. The
Foundation is dedicated to attacking Alzheimer's disease with a focus o
n “Cause, Care and
Cure”. This site has an extensive resource database for locating doctors, care facilities,
government programs and other kinds of services. However, it appears that the listings for
medical facilities can be more or less extensive depend
ing on the geographic area you are
searching. But that doesn’t mean many more hospitals (or centers) specializing in Alzheimer’s
disease don’t exist in your area; it simply means this database has accrued a limited number of
resources to date for your loca
tion.

AREAS OF INTEREST

Search for Alzheimer’s Disease Centers

How to Find It

Go to this section to get information and navigation
instructions on locating “Alzheimer’s Disease
Centers” using the site’s database. NOTE: Not only
can you search for faciliti
es, you can also search
for doctors, physical therapists, home health care
agencies and a variety of other useful resources.

1.

Go to the home page at:
www.alzinfo.org


2.

Click on “Find Doctors and Other Services” on
the
lower right side of the page

3.

On the right side of page, under “Location of
Provider,” enter the state and click on “Search
Providers”

4.

You can refine your search to change criteria by
clicking on “Perform New Search”


CREDENTI ALS

The Fisher Center for Alzh
eimer's Research, at The Rockefeller University in New York City, is
headed up by Nobel Laureate Paul Greengard, PhD. A scientific advisory board made up of eight
scientists distinguished in the field of Alzheimer's disease counsels the foundation's board
regarding research projects and expenditures.

PRI VACY POLI CY

Alzinfo.org’s
Privacy Policy

can be found by

clicking on “Privacy Policy” at the bottom of the home
page
,
www.alzinfo.org
.


Alzinfo.org site can also be fo
und in:
disease and condition
,
treatment
,
specialty doctors
,
specialty hospitals
,
caregiver resources
,
national organizations


49

Level of Material

Simple

..................…

...................

.
Clinical

Navigation

Intuitive ....


...........…....................

Difficult

Tone of Content

Warm .....................….............


.........

Cold

Depth of Material

Basic ...........................…

……

Exhaustive

Back to Main Contents


䉡捫⁴o Sp散楡ity⁈ 獰楴a汳




SECTION:
Di
agnosis and Treatment Decisions:

Specialty Hospitals

Back to Main Contents


䉡捫⁴o Sp散楡ity⁈ 獰楴a汳



Directory of America’s Hospitals

http://www.usnews.com/usnews/health/hospitals/hosp_home.htm




Information on over 6,000 hospitals



Provides links to hospital’s Web site if available



Easy to navigate




Site owned b
y U.S. News and World Report



The hospital directory info is provided by the national
organization, the American Hospital Association



Commercial Web site

Go to this page of U.S. News and World Report’s Web site
to get information on over 6,000 hospitals in
the United
States as provided by The American Hospital Association.
You’ll find a variety of ways to search for hospitals,
including searching by state or name, conducting an A to Z search, or doing an advanced search
that uses a combination of location, h
ospital type, or services offered. While here, you might want
to check out the articles or tools section for other helpful information.


AREAS OF INTEREST

Search for a Hospital

How to Find It

To search for the 6,000 hospitals listed on this Web
site, you
can input the specific name of a hospital,
or search alphabetically or by state. You can also
conduct an advanced search in which you input a
combination of factors including location, services
and type of hospital. The basic overview that’s
provided let’s

you know the kinds of services
provided by the hospital, the number of staff and
beds, and details on recent admission activity.
Sometimes there’s a link to the hospital’s Web site
where you can learn even more.

1.

Go to the home page at
http://www.usnews.com/usnews/health/hospitals
/hosp_home.htm

2.

From the home page, select the type of search
you wish

to perform (“A
-
Z index,” “State index,”
“Name search,” or “Advanced search”)

3.

If the
hospital has a Web site listed, you can
click on the hospital listing for further information

CREDENTI ALS

T
he American Hospital Association (AHA) is the national organization that represents and serves
all types of hospitals, health care networks, and the
ir patients and communities. Close to 5,000
hospitals, health care systems, networks, other providers of care and 37,000 individual members
come together to form the AHA. Data for the U.S. News and World Report is provided by the
AHA.


50

PRI VACY POLI CY

U.S. N
ews and World Report’s
privacy policy

can be found by clicking on “Privacy” at

http://www.usnews.com/usnews/health/hospitals/hosp_home.htm

Back to M
ain Contents



䉡捫⁴o Sp散楡ity⁈ 獰楴a汳





51






Clinical Trials


Clinical trials are research studies that help scientists learn more about different issues relating to
health care. When it comes to a disease like A
lzheimer’s, clinical trials tend to examine how
Alzheimer’s develops or advances. And they look for ways to prevent, slow and cure the
condition.

The sites listed here were chosen with two things in mind. First, you’ll find some good general
information ab
out clinical trials and how they’re supported, a glossary of terms relating to clinical
trials and much more. Second, you’ll find information about specific trials underway that are
geared to solving particular concerns (e.g., finding a new medication, see
king diagnostic
advances, etc.).

Participating in a clinical trial can be a way for Alzheimer’s patients to receive state
-
of
-
the
-
art
treatment, or to help science advance the research into that condition. However, it is critical to
remember that such trial
s are ultimately
experimental

and therefore carry
risks
. That’s why,
when considering participating in a clinical trial, it’s critical to know the answers to the following
two questions:

What stage is this trial?

Clinical trials start at Phase I. If they a
dvance to the end, they
eventually reach Phase IV. Here’s a general look at the differences in these phases, courtesy of
the National Institutes of Health site: Clinicaltrials.gov (
www.clinicaltrials.gov
).

Pha
se I

Researchers test a new drug or treatment in a small group of people (20

80) for the
first time to evaluate its
safety
, determine a safe dosage range and identify side effects.

Phase II

The study drug or treatment is given to a larger group of people (
100

300)
to see if it
is effective
and to further
evaluate its safety
.

Phase III

The study drug or treatment is given to large groups of people (1,000

3,000) to
confirm its effectiveness, monitor side effects, compare it to commonly used treatments and
col
lect information that will allow the drug or treatment to be used safely.

Phase IV

This part of the study consists of post
-
marketing studies designed to delineate
additional information including the drug's risks, benefits and optimal use.

Who’s sponsoring

this trial?

It used to be that clinical trials were run only by nonprofit
organizations, government agencies (like the National Institutes of Health) and academic medical
centers (like UCLA Medical Center or Emory School of Medicine). However, more and mo
re
funding for such trials now comes from pharmaceutical companies, medical device manufacturers
and other for
-
profit businesses. Of course, many trials would never come about without such
corporate funding. The downside is that it can be hard for a compan
y with a vested financial
interest in a trial’s outcome to stay objective. (Similarly, if doctors and other researchers are

5
2

getting grant money for a study from a corporation rather than the government, they could lose
their objectivity.)

That means Alzhei
mer’s patients and their caregivers should insist on knowing as much about a
clinical trial as possible BEFORE agreeing to participate. That’s called
informed consent
.
Clinicaltrials.gov offers a clear, concise explanation of informed consent and what anyo
ne should
know before agreeing to participate in clinical trials.

IN THIS SECTION
(Click on an item to jump to that information.)

Alzheimer’s Disease and Education Referral Center

58



Search for
new or open trials



E
-
mail Alert option



Toll
-
free information hot line: 1
-
800
-
438
-
4380

Alzheimer Research Forum

59



Search for trials by drug name or keyword



Sort by drug name and phase



Trials also listed alphabetically

ClinicalTrials.Gov

61



Easy
-
to
-
navigate, lists more than
13,200 studies



Besides drug trials, includes tests for brain imaging and other studies



Search by location, sponsor or other options

Centerwatch

62



Easy access to numerous trials



Discusses newly approved drugs



Offers e
-
mail alerts

Veritas Medicine

64



Provides personalized trial notification



Free newsletter



New drug treatment info
rmation


53

Level of Material

Simple ........…

..............................

Clinical

Navigation

Intuitive ...


.................................….
Difficult

Tone of Content

Warm .................…

...........................

Cold

Depth of Mater
ial

Basic .......


...............................
Exhaustive

SECTION:
Diagnosis and Treatment Decisions
:

Clinical Trials

Back to Main Contents


䉡捫⁴o⁃汩湩捡氠lr楡is


The Alzheimer’s Disease Education and
Referral Center

http://www.nia.nih.gov/alzheimers





Search for new and open trials



E
-
mail Alert option



Toll
-
free information hot line: 1
-
800
-
438
-
4380




Maintained by the Alzheimer’s Disease Education and
Referral (ADEAR) Center



Funded by

the National Institute on Aging



The National Institute on Aging is

part of the National
Institute

of Health

This easy
-
to
-
navigate site contains an Alzheimer’s Disease Clinical Trials Database that is a joint
project of the U.S. Food and Drug Administratio
n and the National Institute on Aging. It allows you
to search for current trials and to receive trial alerts via e
-
mail.
You can also learn which trials
have been recently featured in the news. In addition, its toll
-
free

hotline is staffed by information
specialists ready to answer your questions about Alzheimer’s disease Monday through Friday
from 8:30 a.m. to 5:00 p.m. EST.

AREA OF I NTEREST

Alzheimer’s Disease Clinical Trials Database

How to Find It

This site lists current clinical trials for Alzheimer’
s
disease in its “Clinical Trials Database.” For
instance, there were
49

trials recently recruiting for
participants. You can also search by location, the
participant’s qualifications or treatment involved.

1.

Go to the home page at:
http://www.nia.nih.gov/alzheimers

2.

On the right side menu bar click on “”Clinical
Trials”

3.

Click on “Search for Trials” on the lower left side
of the page

4.

Click on buttons to view “Open Trials” or “New
Trials”

5.

Focus your search by i
nputting information on
location, qualifications or treatment involved
.



Alzheimer’s Disease Clinical Trials E
-
mail Alert

How to Find It

You can sign up to receive e
-
mail notification of any
newly added clinical trials to the site’s database.
You can al
so be alerted whenever ADEAR puts out
a news release or a new publication.

1.

Go to the home page at:
http://www.nia.nih.gov/alzheimers

2.

Click on “Sign Up for Email Alerts” on the right
side menu bar

3.

Fill out

the form by entering your email address
and checking your areas of interest


CREDENTI ALS


54

Level of Material

Simple ........…


.............................

Clinical

Navigation

Intuitive ...



................................
...

Difficult

Tone of Content

Warm .................…


..........................
Cold

Depth of Material

Basic .......



.............................

Exhaustive

Alzheimer's Disease Education and Research Centers are funded by the National Institute on
Aging, which is a member of the U.S. government's National Institutes of H
ealth.

PRI VACY POLI CY

The Alzheimer’s Disease Education and Referral Center’s
Privacy Policy

can

be found by

clicking
on "Policies" at the bottom of the home page,

http://www.nia.nih.gov/alzheimers

and th
en
selecting “Privacy Policy.”


The Alzheimer’s Disease Education and Referral Center site can also be found in:
specialty
doctors
,
specialty hospitals
,
national organizations
,
e
-
mails and newsletters about
Alzheimer’s disease

Back to Main Contents



䉡捫⁴o⁃汩湩捡氠lr楡i
s


SECTION:
Diagnosis and Treatment Decisions
:

Clinical Trials

Back to Main Contents


䉡捫⁴o⁃汩湩捡氠lr楡is


Alzheimer Research Forum

www.alzforu
m.org




Search for trials by drug name or keyword



Sort by drug name and phase



Trials also listed alphabetically




Nonprofit organization



Creates and maintains resources for researchers

The Alzheimer Research Forum is a nonprofit organization
founded in 1996
. The Web site creates and maintains
resources for researchers and produces discussion forums to promote debate and the sharing of
ideas and theories. You can search its database of drugs in clinical trials and learn what role each
drug has in treating Alz
heimer’s.

AREA OF I NTEREST

Drugs in Clinical Trials

How to Find It

Each
clinical
trial description explains the
developmental status of the drug, its primary
medical role, its possible role in Alzheimer’s
disease, contraindications, side effects, evidence

to
date for and against its use in Alzheimer’s disease,
the company that makes the drug and links to
1.

Go to the home page at:
www.alzforum.org


2.

Scroll down left hand column to “Drug
Development” and click on “Drugs in Clinical
Trial”

3.

Fill out search form or scroll further down page
for alphabetical listings



55

further information on the medication. Last we
looked, the site carried an
alphabetical listing of
60
clinical trials.

CREDENTI ALS

The Web site is written and m
aintained by a team of science and medical writers and editors,
scientists, doctors and technology consultants. The Scientific Advisory Board of the Web site
includes leading scientists from MIT, NIA, Harvard Medical School, Columbia University and
Loyola
University Medical Center.

PRI VACY POLI CY

The Alzheimer Research Forum’s
Privacy Policy

can be found by
clicking on "Privacy Policy" at
the bottom of the home page,

www.alzforum.org

B
ack to Main Contents



䉡捫⁴o⁃汩湩捡氠lr楡is



56

Level of Material

S
imple ........…

..............................

Clinical

Navigation

Intuitive ...


.....................................
Difficult

Tone of Content

Warm .................…

...........................

Cold

Depth of Material

Basic .......


....................
...........
Exhaustive

SECTION:
Diagnosis and Treatment Decisions
:

Clinical Trials

Back to Main Contents


䉡捫⁴o⁃汩湩捡氠lr楡is


ClinicalTrials.Gov

www.clinicaltrials.gov




Easy
-
to
-
navigate, lists more than 13,200 studies



Besides drug trials, includes tests for brain imaging
and other studies



Search by location, sponsor, or other opt
ions




A service of the National Institutes of Health



Developed by the National Library of Medicine, the
world’s largest medical library



Sponsored by the National Institutes of Health and the
U.S. Food and Drug Administration (FDA)

Clinicaltrials.gov provid
es the general public with current information on clinical research studies.
This easy
-
to
-
navigate site currently contains more than 13,200 clinical studies in more than one
hundred countries, though most are conducted in the United States and Canada. List
ed clinical
trials for Alzheimer’s disease include

experimental medications, new ways to take medications
and brain imaging.

AREA OF I NTEREST

Alzheimer’s Disease Clinical Trials

How to Find It

There are several ways to search for Alzheimer’s
disease clini
cal trials on this site: By disease,
sponsor, treatment and location. A recent search
using “Alzheimer’s disease” as the search term
resulted
in
146
trial

options. You must closely
examine any search results to determine all the
eligibility requirements yo
u must meet and to
determine each trial’s current phase and objectives.

1.

Go to the home page at:
www.clincialtrials.gov


2.

Click on “Focused Search”
below “Search within
Specific Fields”

3.

Type “Alzheimer's disease
” into the disease or
condition box

4.

Type city and/or state (and other pertinent
information) into appropriate boxes

5.

Click “Search”

CREDENTI ALS

Data are provided to
ClinicalTrials.gov

by organizations that sponsor and implement the studies.

PRI VACY POLI CY

The National Library of Medicine’s
Privacy Policy

can be found by
clicking on "About" on the top
menu bar of the home page,

www.clinicaltrials.gov
,
and then clicking on “Terms and Conditions.”


57

Level of Material

Simple ................…


.....................

Clinical

Navigation

Intuitive ...…

.
................................

Difficult

Tone of Content

Warm .................…


..........................
Cold

Depth of Material

Basic ........................…
.


........

Exhaustive

Back to Main Contents



䉡捫⁴o⁃汩湩捡氠lr楡is


SECTION:

Diagnosis and Treatment Decisions
: Clinical Trials

Back to Main Contents


䉡捫
to⁃汩湩捡氠lr楡is



CenterWatch: Clinical Trial Listing
Service

www.centerwatch.com




Easy access to Alzheimer’s disease trials



Discusses newly approved drugs



Offers e
-
mail alerts




Provides information on clini
cal trials through books,
newsletters and other outlets



Trial information available to everyone, from patients to
major research centers



Commercial, for
-
profit health information publisher

The company that runs CenterWatch has been providing clinical trial

information in numerous
formats

books, newsletters and others

for years. This site helps you find details on more than
41,000 clinical trials, including
151 t
rials currently being conducted on Alzheimer’s. Among the
information offered are: what’s being

s
tudied, how long the trials last and who’s eligible to
participate. The site also provides information on drugs recently approved by the Food and Drug
Administration (FDA).

AREAS OF INTEREST

Alzheimer’s Disease Clinical Trials

How to Find It

This section
allows you to see what clinical trials
are taking place on Alzheimer’s disease in your
area of the country. Information for contacting the
study coordinator is provided, including a postal
mailing address, an e
-
mail address and phone
number.

1.

Go to the home

page at:
www.centerwatch.com


2.

In the left side “Patient and General Resources”
box, click on “Trial Listings”

3.

Click on “Neurology” from the menu of options

4.

Scroll down the page and click on “Alzheimer’s
Disease


5.

The next page will categorize trial by state


E
-
mail Notification Services

How to Find It

One advantage of this site is that if you sign up with
your e
-
mail address, CenterWatch will send you
news of what’s happening in clinical trials. Among
the notif
ications you’ll receive: when new trials are
1.

Go to the home page at:
www.centerwatch.com

2.

In the

left side “Patient and General Resources”
box, click on “Notification Services”

3.

Follow listed instructions to subscribe


the form
will ask you for email address, medical area of
interest, geographic re
gion, and options for the

58

Level of Material

Simple ......
...................…


............

Clinical

Navigation

Intuitive ..



................................
....

Difficult

Tone of Content

Warm ......................…


.....................
Cold

Depth of Material

Basic .......................…
.


.........

Exhaustive

added, results on ongoing clinical trials and reports
on drugs recently approved by the FDA for
Alzheimer’s disease.

amount

of information you’
d like to receive


CREDENTI ALS

CenterWatch is a Boston
-
based publishing and information services company and a business of
The Thomson Corporation. They provide information services used by patients, pharmaceutical,
biotechnology and medical device compan
ies, CROs and research centers involved in clinical
research around the world. Their web site also lists promising therapies newly approved by the
FDA (Food and Drug Administration).

PRI VACY POLI CY

CenterWatch’s
Privacy Policy

can be found by

clicking on
“Your Privacy” at the top of the home
page,

www.centerwatch.com

Back to Main Contents



䉡捫⁴o⁃汩湩捡氠lr楡is


SECTION:

Diagnosis and Treatment

Decisions
: Clinical Trials

Back to Main Contents


䉡捫⁴o⁃汩湩捡氠lr楡is


Veritas Medicine

www.veritasmedicine.com




Provides personalized
trial notification



Free newsletter



New drug treatment information




Commercial, for
-
profit health resource



Receives revenues from pharmaceutical companies

Veritas Medicine is an online health resource that receives
revenue from pharmaceutical companies in e
xchange for
connecting patients to clinical trials and new treatment therapies. Its
website

does an excellent
job of explaining what clinical trials are, how they work and other background information. Then it
provides you with easy access to a wide range
of clinical trials taking place (as well as medical
news and other information).

AREA OF I NTEREST

Alzheimer’s Disease Clinical Trials

How to Find It

Right on the home page there’s an easy
-
to
-
search
1.

Go to the home page
www.veritasmedicine.com


2.

Select “Alzheimer’s Disease

from “Find Clinical
Trials & Disease Information”

and click “Go”


59

box that allows you to choose “Alzheimer’s
Disease.” This

way, you can easily access a list of
ongoing clinical trials specific to Alzheimer’s. After
filling out a simple questionnaire, you’ll be directed
to trials that are appropriate according to your
medical issues and/or geographic location. You can
also rec
eive personalized trial notification, learn
about drugs in development and stay informed
about medical research with a free newsletter.

3.

Select “Find Clinical Trial” from the list

4.

Fill in
the detailed

questionnaire; site will list
clinical trials that fit your criteria


CREDENTI ALS

The Alzheimer’s disease
category is overse
en by Medical Editor Sonia Potrebic, M.D., Ph.D.,
Assistant Adjunct Professor in Neurology, UCSF.

PRI VACY POLI CY

Veritas
Medicine’s
Privacy Policy

can be

found by

click
ing

on "Terms and Policies" at the top of
the home page
,
www.veritasmedicine.com

Back to Main Contents



䉡捫⁴o⁃汩湩捡氠lr楡is



60







Tools


Living with a chronic illness inevitably necessitates wading through an assortment of cl
inical
information. Whether you are someone who’s been diagnosed with Alzheimer’s or a caregiver,
here are tools to aid you.

Under the category
Medical Dictionaries and Encyclopedias
, you’ll find help interpreting
medical jargon, plus more extensive infor
mation on various terms.
Diagnostic Test
s

will provide
an understanding of the many diagnostic tests you (or a loved one) may have to undergo.
Medication Information

provides data on specific medication(s), and the listings under
Drug
Interactions

can aler
t you to potentially dangerous interactions between certain medications and
other substances.


Medical Dictionaries and Encyclopedias

Diagnostic and Lab Tests

Medication Information

Drug Interaction Databases





61






Medical Dictionaries and
Encyclopedias


As a patient or caregiver of someone diagnosed with Alzheimer’s, you’ll undoubtedly be
confronted with complex medical t
erms. Much of the clinical information can be confusing for a
variety of reasons. Sometimes the confusion arises due to the speed with which things change. A
drug or surgical technique that wasn’t available three months ago has finally been approved.
Other

times confusion develops because of the ways information is communicated. Package
inserts for drugs are notoriously confounding, often due to highly complex language. Some
doctors talk over their patients’ or the caregiver’s heads (unless you force them t
o do otherwise!).
The experienced Alzheimer’s caregiver might start exploring sources of more advanced
information, such as medical journals. Being designed for health professionals, their language
can be confusing.

To help you to a better understanding of

medical information, this section contains a series of
sites that provide everything from a quick definition of a word or phrase to extensive explanations
on a subject. In particular, you’ll find two types of help:

The
medical dictionaries
provide you wit
h definitions of words and phrases that are either very
technical (like “basal ganglia”) or that take on a whole new meaning when used in medicine (like
“constituent”).
Medical encyclopedias

contain even more comprehensive explanations of terms
and conditi
ons. There may be paragraphs, even pages, of explanation and it may include various
types of illustrations to help you further understand the topic being discussed. (This being the
Web, some of the information is conveyed through various interactive progra
ms.)

IN THIS SECTION
(Click on an item to jump to that information.)


MedTerms.com



70



Easy
-
to
-
use medical dictionary



Very complete



Easy
-
to
-
navigate site


Merriam Webste
r Medical Dictionary

71



Easy
-
to
-
navigate medical dictionary



Uncomplicated site



Search by word



62

Encarta.com

73



Text accompanied by videos, pictures, audio clips



Concise and easy to understand


The Adam Illustrated Encyclopedia (National Library of Medicine)

75



Easy
-
to
-
understand explanation of Alzheimer’s



Listings include illustrations, support groups and other supplemental
material



63

Level of Material

Simple ..........................…


...........

Clinical

Navi
gation

Intuitive ..…

................................
..

Difficult

Tone of Content

Warm ......................…


.....................
Cold

Depth of Material

Basic ..................………


........

Exhaustive

SECTION:

Tools: Medical Dictionaries and
Encyclopedias

Back to Main Contents


䉡捫⁴o⁍敤楣慬⁄ 捴楯慲楥i⁡湤 Ec祣汯l敤e慳



MedTerms
.com

www.medterms.com




Easy
-
to
-
use medical dictionary



Very complete



Easy
-
to
-
navigate site




MedTerms.com is owned by
MedicineNe
t, Inc., which is
part of the

WebMD
Network



Material overseen by doctors and other health
professionals


MedTerms.com is an online medical dictionary w
hich is owned by MedicineNet an online health
care media publishing company, run by doctors and other health professionals.
MedicineNet is
part of the WebMD network.

MedTerms.com

is a c
omprehensive but easy
-
to
-
use online medical
dictionary.

AREA OF I NTERES
T

The Medical Dictionary

How to Find It

MedTerms is a medical dictionary designed to help
you understand the words and phrases your
doctors are using. Unlike some medical dictionaries
(which use more technical terms to explain other
technical terms) this
one provides relatively simple,
easy
-
to
-
follow definitions. You can access the
dictionary two ways: by actually typing the word
you seek into the “search” area or choosing the
right letter of the alphabet.

1.

Go to the home page at:
www.medterms.com


2.

Select a letter, or type a term in “Search the
Dictionary”

CREDENTI ALS

MedTerms medical dictionary is the medical reference for MedicineNet.com and is produced by a
network of U.S. Board Certified Physicians and Allied Hea
lth professionals. MedicineNet, Inc. is
owned and operated by WebMD and part of the WebMD network. MedicineNet is an online,
health care media publishing company. The material is produced by a network of U.S. board
-
certified physicians and other health pro
fessionals.
WebMD states that its “content staff blends
award
-
winning expertise in medicine, journalism, health communication and content creation to
bring you the best health information possible. Our esteemed colleagues at
MedicineNet.com

are
frequent contributors to WebMD and comprise our Medical Editorial Board. Our Independent
Medical Review Board continuously reviews the site for accuracy and timeliness.”



64

Level of Material

Simple .................…


....................

Clinical

Navigation

Intuitive ....



................................
..

Difficult

Tone of Content

Warm .
................…


..........................
Cold

Depth of Material

Basic ......................…


...........

Exhaustive

PRI VACY POLI CY

MedicineNet’s Privacy Policy can be found
by

clicking on "Privacy Policy" on the top right of the
home page
,
www.medterms.com

Back to Main Contents



䉡捫⁴o⁍敤楣慬⁄ 捴楯慲楥i⁡湤 Ec祣汯l敤
i慳



SECTION:

Tools: Medical Dictionaries and Encyclopedias

Back to Main Contents


䉡捫⁴o⁍敤楣慬⁄ 捴楯慲楥i⁡湤 Ec祣汯l敤e慳



Merriam Webster Medical Dictionary

www.intelihealth.com




Easy
-
to
-
navigate medical dictionary



Uncomplicated site



Search by word




Part of the InteliHealth Web site



Commercial venture owned by Aetna U.S.

Healthcare



Derives revenue from advertising and other for
-
profit
sources

InteliHealth presents a section with a variety of information
specific to Alzheimer’s disease, offered in a patient
-
friendly format. One of its best site offerings is
easy access to
the Merriam Webster Medical Dictionary.

AREA OF I NTEREST

The Merriam Webster Medical Dictionary

How to Find It

The Merriam Webster Medical Dictionary found at
InteliHealth.com can assist you in understanding
the clinical terminology related to Alzheimer’s

disease. Besides conducting a simple word search,
you can perform an advanced search or refer to the
pronouncement guide and explanatory notes.

1.

Go to the home page at:
www.intelihealth.com


2.

On the main menu bar
, under

“Look It Up,” click
on “Medical Dictionary”

3.

Enter search word into search engine

CREDENTI ALS

The material posted to InteliHealth is reviewed by its medical editorial boards, which are drawn
from the faculties of Harvard Medical School and the Univ
ersity of Pennsylvania School of Dental
Medicine.


65

PRI VACY POLI CY

InteliHealth’s
Privacy Policy

can be found by clicking on “Privacy Policy” on the bottom of the
home page

www.intelihealth.com

Back to Main Contents



䉡捫⁴o⁍敤楣慬⁄ 捴楯慲楥i⁡湤 Ec祣汯l敤e慳



66

Level of Material

Simple ................…


.....................

Clinical

Navigation

Intuitive ........….


...........................

Difficult

Tone of Content

Warm ...............................…

.

...........

Cold

Depth of Mater
ial

Basic .....................…


.............

Exhaustive

SECTION:

Tools: Medical Dictionaries and Encyclopedias

Back to Main Cont
ents


䉡捫⁴o⁍敤楣慬⁄ 捴楯慲楥i⁡湤 Ec祣汯l敤e慳


Encarta.com

www.encarta.com




Text accompanied by videos, pictures, audio clips



Concise and eas
y to understand




Produced by Microsoft



Part of MSN Learning and Research

The online edition of the Encarta Encyclopedia offers more
than just encyclopedia text. Many listings are
accompanied by audio and video components that further
aid your understanding

of various topics being discussed.

AREA OF I NTEREST

The Encarta Encyclopedia

How to Find It

Alzheimer’s disease, its tests and other topics
become much easier to understand thanks to the
various visual aids accompanying Encarta’s easy
-
to
-
follow text. A g
ood example: There are pictures
of brain imaging in some of the sections.

1.

Go to the home page
www.encarta.com


2.

Enter search term, such as “Alzheimer’s
Disease,” into the search engine

3.

Scroll through the list of searc
h results to click
on your area of interest

CREDENTI ALS

In
formation on who contributed an

article can be found at the en
d of each article
.

PRI VACY POLI CY

Encarta.com’s
Privacy Policy

can be found by
clicking on "MSN Privacy" at the bottom of the
home page
,

www.encarta.com

Back to Main Contents



䉡捫⁴o⁍敤楣慬⁄ 捴楯慲楥i⁡湤 Ec祣汯l敤e慳



67

Level of Material

Simple .…


................................
....

Clinical

Navigation

Intuitive .............…


.......................

Difficult

Tone of Content

Warm ..................................…


..........
Cold

Depth of Material

Basic .........................


............

Exhaustive

SECTION:

Tools: Medical Dic
tionaries and Encyclopedias

Back to Main Contents


䉡捫⁴o⁍敤楣慬⁄ 捴楯慲楥i⁡湤 Ec祣汯l敤e慳



The Adam Health Illustrated
Encyclopedia (National Librar
y of
Medicine)

www.nlm.nih.gov




Easy
-
to
-
understand explanation of Alzheimer’s



Listings include illustrations, support groups and
other supplemental material




Online service of the National Library of Medicine (NLM)



Supported by the National Institutes of Health (NIH)



NIH is the U.S. government’s leading institution for
medical research

MEDLINEPlus is the online research service of the National
Library of Medicine (NLM). The more than 4,000 articles in its easy
-
to
-
und
erstand health
encyclopedia include an extensive section on Alzheimer’s disease.

AREA OF I NTEREST

The Adam Health Illustrated Encyclopedia

How to Find It

The Alzheimer’s disease listings in this
encyclopedia include an overview of the disease
(including i
ts symptoms and long
-
term outlook
(
prognosis)

tests, support groups and much more.
To further aid your understanding, there are
illustrations and a glossary (the latter clearly
explains technical terms).

1.

Go to the home page at:
www.nlm.nih.gov


2.

Click on “Health Information” on the left side

3.

Click on “MedLinePlus”

4.

Click on “Medical Encyclopedia”

5.

Click on the alphabetical listing of the term you
would like to search for

6.

Click on area of interest

CREDENTI ALS

MEDLINEPlus

is a service of the National Library of Medicine, run by the National Institutes of
Health. It is the world’s largest medical library.

PRI VACY POLI CY

The National Library of Medicine’s
Privacy Policy

can be found by clicking on

“Privacy” at the
bottom of

the home page,

www.nlm.nih.gov


68

The National Library of Medicine site can also be found in:
disease and condition
,
treatment
,
medical news
,
medical journals

Back to Main Contents



䉡捫⁴o⁍敤楣慬⁄ 捴楯慲楥i⁡湤 Ec祣汯l敤e慳



69






Diagnostic and Lab Tests


Today there are all sorts of tests doctors can perform. There are tests to get an initial diagnosis,
tests to see how a condition is or isn’t progressing and tests to measure which (if any) of your
capabilities nee
d help (like speech or movement). These tests range from simple, in
-
office blood
work to highly sophisticated medical scanners.

Currently, there is no single test that can accurately or definitively diagnose Alzheimer's disease.
However, patients can under
go various tests and procedures to rule out other causes for
dementia before being issued a possible or probable diagnosis of Alzheimer’s disease.

The downside, of course, is that all these tests can overwhelm and confuse you. What’s an ESR?
Why is it need
ed? What’s the difference between a CT and an MRI?

Here are Web sites that can help you better understand these tests. The difference between the
Medical Dictionary and Encyclopedia

sites above and the ones listed here in
Diagnostic and
Lab Tests
is that y
ou wouldn’t use the sites below for interpreting medical words or terms in
general. Rather, they’re specifically designed to help you understand medical tests.

IN THIS SECTION
(Click on an item to jump to that information.)

Diagnostic Tests: The Harvard Family Health Guide

78



Easy
-
to
-
understand diagnostic test explanations



Helps you prepare for tests



Helps you understand the results

Lab Test Online

79



Explains most common lab tests for Al
zheimer’s



Helps you play a role in determining your tests



Comprehensive and easy
-
to
-
navigate


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SECTION:

Tools: Diagnostic and Lab Tests

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䉡捫⁴o⁄楡杮o獴楣s慮a⁌慢⁔敳t



Dia
gnostic Tests: The Harvard Family
Health Guide

http://www.health.harvard.edu




Easy
-
to
-
understand diagnostic test explanations



Helps you prepare for tests



Helps you understand the results




Produced by Harvard
University in conjunction with
Simon and Schuster

This useful section of Harvard University’s health Web site
can prepare you for a variety of diagnostic tests by
providing a good understanding of how each test is done. Besides diagnostic tests, the site
p
rovides you with solid information on Alzheimer’s disease from the world
-
famous Harvard
Medical School Family Health Guide.

AREA OF I NTEREST

Diagnostic Tests

How to Find It

This glossary separates diagnostic tests by
categories of body systems. You’ll fin
d Alzheimer’s
tests under the “brain and nervous system”
category. The easy
-
to
-
understand language
explains various tests (like a “lumbar puncture”),
tells why they’re necessary, how to prepare for
them and what the results mean.

1.

Go to the home page at:
http://www.health.harvard.edu


2.

Enter “diagnostic” in the search box on the top
of the page

3.

Select “Brain and Nervous System” from the
menu of options in the center of the page

4.

Click on the specific test you woul
d like to learn
about

CREDENTI ALS

The Harvard Medical Family Health Guide is written and edited by more than 170 members and
associates of Harvard Medical School. The editor
-
in
-
chief for online materials is
Anthony L.
Komaroff, M.D., the Steven P. Simcox/
Patrick A. Clifford/James H Higby Professor of Medicine at
Harvard Medical School, Senior Physician at Brigham and Women’s Hospital in Boston, and
Editor
-
in
-
Chief of Harvard Health Publications.

PRI VACY POLI CY

Harvard Medical Family Health Guide’s
Privacy
Policy

can be found by
clicking on "Privacy
Policy" at the bottom of the home page,

www.health.harvard.edu


71

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Clin
ical

Navigation

Intuitive .............


..........................

Difficult

Tone of Content

Warm ..............................


.................
Cold

Depth of Material

Basic ......................……


........

Exhaustive

Back to Main Contents



䉡捫⁴o⁄楡杮o獴
楣i慮a⁌慢⁔敳t


SECTION:

Tools: Diagnostic and Lab Tests

Back to Main Contents


䉡捫⁴o⁄楡杮o獴楣s慮a⁌慢⁔敳t


Lab Tests Online

www.labtestsonli
ne.org



Explains most common lab tests for Alzheimer’s



Helps you play a role in determining your tests



Comprehensive and easy
-
to
-
navigate




Noncommercial, public resource



Offered by lab test professionals and a collaboration of
professional societies



Sponso
red by pharmaceutical and medical diagnostic
companies

This navigable site provides lots of insight into how and why various blood tests are used. Among
the things it explains: why people are tested in certain ways and what it means to have normal or
abnor
mal results. This public resource helps you play a role in determining what tests you or your
loved one should undergo and why.

AREA OF I NTEREST

Learn About Lab Tests

How to Find It

This section allows you learn about laboratory tests
that aid in the cat
egorization of dementia. Click on
a test to understand why it is useful, when to do it
and how the test is administered.

1.

Go to the home page at:
www.labtestsonline.org


2.

If you know what test you’d like to lea
rn about,
select it from the scroll down list in “Tests”

3.

You can also simply choose “Alzheimer’s
Disease” from the “Conditions and Disease” box

4.

On the “Alzheimer’s Disease” page, scroll down
to see “Common Lab Tests”

5.

Click on any test to read more about it
, including
“Why get tested,” “When to get tested,” and
“Sample required”

CREDENTI ALS

The
Editorial Review Board of Lab Tests Online is composed of doctors and other health care
professionals who work in

laboratories around the United States.

PRI VACY POL
I CY


72

Lab Tests Online’s
Privacy Policy

can be found by

clicking on "About this Site" at the bottom of
the home page,

www.labtestsonline.org

and then clicking on “Privacy.”

Back to

Main Contents



䉡捫⁴o⁄楡杮o獴楣s慮a⁌慢⁔敳t



73







Medication Information


With medication being the main treatment for Alzheimer’s disease, patients and caregivers are
always searching for the latest drug information. Th
e medication sites listed below will help keep
you up to date.

Important information to be found on these sites includes: how to take each medication (for
example, with or without food), the proper dosage, the side effects (also called
adverse reactions)

of different drugs and warnings about who shouldn’t take certain medications (called
contraindications
). Continue on to the next section

Drug Interactions

and you’ll find sites that
specifically warn you about possible interactions between your drug and an
y other drug or even
certain foods.

Some of the sites we’ve found include overviews on prescription medications as well as
information on vitamins, herbs and other supplements that you might be using (or considering) as
part of your treatment. As always, r
emember that these supplemental therapies should only be
included
after

you’ve discussed them with your doctor.

Information in some of these databases has been taken directly from clinically oriented
patient
monographs
. Those are the package inserts that c
ome with most drugs, and they can be difficult
to understand. Don’t hesitate to print out something you find confusing and bring it to your doctor
or pharmacist to translate.

IN THIS SECTION
(Click on an item to jump to that information.)

RX List

83



Answers frequently asked questions about medications



Information provided in English and Spanish



More extensive, but clinical, information also available

DrugDigest

84



Basic information on

drugs, herbs and supplements



Compares drugs and their side effects



Easy
-
to
-
navigate site

InteliHealth

86



Clear and concise drug information


74



Checks for interactions and side effects



Provides reference pictures of various

Rx and nonprescription drugs



75

Level of Material

Simple

...................



.....................

Clinical

Navigation

Intuitive ....
..................



................

Difficult

Tone of Content

Warm .....................



.........................
Cold

Depth of Material

Basic .........................



...........

Exhaustive

SECTION:

Tools: Medication Information

Back to Main Contents


䉡捫⁴o⁍敤楣慴楯⁉湦or浡楯i


RxList

www.rxlist.com




Information provided in English and Spanish



More extensive, but clinical, information also
available





This site is owned and operated by WebMD

RxList has a database of medications that can be searched
for important drug information. Patients and caregi
vers can
access drug monographs (detailed information on the drug
supplied by the pharmaceutical companies).
You
can also learn a drug’s generic name, find out
about possible side effects and get price quotes.

AREAS OF INTEREST

Drug Information and Rx Mono
graphs

How to Find It

This site provides detailed information and
important facts about specific medications, both
prescription and over
-

the
-
counter, as well as
supplements The site also includes the drug
manufacturer’s
monograph

or
package insert

for
ev
ery drug. Included in these monographs is
information on the drug’s effects, potential side
effects, chemical composition

and more. Note that
much of the monograph information is very
technical, hence not necessarily designed for the
average patient.

1.

Go to

the home page at:
www.rxlist.com


2.

Type in medication name in the top search bar
and click “Go”

3.

Click on the exact drug you would like to learn
about

4.

You can also search “Drugs A
-
Z” or “Diseases
and Conditions” to fi
nd specific drug information




CREDENTI ALS

RxList.com is part of the WebMD network. Founded by pharmacists in 1995, RxList’s purpose is
to provide an Internet Drug Index resource. The staff at RxList continuously reviews and updates
the site with articl
es written by pharmacists and physicians and data provided by credible and
reliable sources like the FDA and First Data Bank, Inc.

PRI VACY POLI CY


76

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Simple

.......................



.................

Clinical

Navigation

Intuitive .........



.............................

Difficult

Tone of
Content

Warm ....................



..........................
Cold

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Basic ........................



............

Exhaustive

RxLists’s Privacy Policy can be found by clicking on “Privacy Policy” at the bottom of the home
page,

www.rxlist.com


Back to Main Contents


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SECTION:

Tools: Medication Information

Back to Main
Contents


䉡捫⁴o⁍敤楣慴楯⁉湦or浡楯i


DrugDigest

www.drugdigest.org



Basic information on drugs, herbs and supplements



Compare drugs and their side effects



Easy
-
to
-
naviga
te site




Sponsored by Express Scripts, Inc.



This company is the nation’s largest independent
pharmacy benefits manager



Information is complied by leading pharmacists and
medical experts.

DrugDigest helps you stay informed about the wide variety of medicine
s on today’s market for
Alzheimer’s patients. The site combines the resources of pharmacy experts and physicians from
leading academic institutions. It provides you with basic information on prescription and over
-
the
-
counter drugs, vitamins and herbs.

AREA

OF I NTEREST

Drug and Herb Database

How to Find It

This part of the site provides basic info on various
medications, vitamins and even herbal
supplements
. Presented in Question and Answer
format, these pages will address your concerns on
topics such as “W
hat if I miss a dose?” “What drugs
may interact with this medication?” and “Where can
I keep my medicine?”

1.

Go to the home page at:
www.drugdigest.org


2.

Type the name of the drug/herb/supplement into
the search area

on the left side

3.

Click “Go”

CREDENTI ALS

A large group of pharmacy experts from leading medical institutions and universities contribute to
this site. These experts come from Harvard University, St. Louis College of Pharmacy, the
University of Pennsylvani
a and the University of Texas Medical Center, among others.


77

Level of Material

Simple

............



............................

Clinical

Navigation

Intuitive .....



................................
.

Difficult

Tone of Content

Warm ....................



..........................
Cold

Depth of Materi
al

Basic .........................



...........

Exhaustive

PRI VACY POLI CY

DrugDigest’s
Privacy Policy

can be found by

clicking on "Privacy Policy" at the bottom of the
home page,

www.drugdigest.org


The DrugDige
st site can also be found in:
drug interaction databases

Back to Main Contents


䉡捫⁴o⁍敤楣慴楯⁉湦or浡楯i


SECTION:

Tools: Medication Information

Back to Main Contents


䉡捫⁴o⁍敤楣慴楯⁉湦or浡楯i


InteliHealth

www.intelihealth.com



Clear and concise drug information



Checks for intera
ctions and side effects



Provides reference pictures of various Rx and
nonprescription drugs




Commercial venture owned by Aetna U.S. Healthcare®



Revenues derived from advertising and other for
-
profit
sources



Health information overseen by editors of Harvard

Medical School and the University of Pennsylvania School of Dental Medicine

InteliHealth offers such basic information as how to read a drug label. You can also search for
information on a particular drug
through a partner site, SafeMedication.com,
and re
ceive a
detailed description of the medication and

how to take it, what to tell your doctor, side effects and
warnings. The content is laid out in an extremely clear and concise manner. This Web site also
includes pictures of both brand
-
name and generic me
dications.

AREA OF I NTEREST

Drug Resource Center

How to Find It

This section allows you to run a fast and thorough
search on any prescribed drug. The information
you receive runs the gamut, from how to store the
medication to recognizing those side effect
s that
suggest you should call your doctor right away.

1.

Go to the home page at:
www.intelihealth.com


2.

Click on “Drug Resource Center” on left side

3.

In search box marked “Enter a Drug Name,”
type in name of medica
tion

4.

Click “Go”

5.

Select “Continue,” to connect to
SafeMedication.com for your search results

6.

Click on the exact drug you would like to learn
about


78


CREDENTI ALS

The material posted to InteliHealth is reviewed by its medical editorial boards, drawn from the

faculties of Harvard Medical School and The University of Pennsylvania School of Dental
Medicine.

SafeMedication.com is posted by the American Society of Health
-
System Pharmacists, a national
professional association that represents pharmacists. To learn

more, visit

http://www.ashp.org
.

PRI VACY POLI CY

InteliHealth’s
Privacy Policy

can be found by
click on "Privacy Policy" at the bottom of the home
page,

www.intelihealth.com

Sa
feMedication.com’s Privacy Policy can be found by clicking on “ASHP Privacy Policy” on the
homepage
,

http://www.ashp.org/


The InteliHealth site can also be found in:
medical dictionar
ies and encyclopedias


Back to Main Contents


䉡捫⁴o⁍敤楣慴楯⁉湦or浡楯i



79






Drug Interaction Databases


The phrase “drug interactions” actually has a lot of meanings. In some case
s it refers to highly
dangerous results that can occur if two prescription drugs are mixed together. But did you know